Because both Fibromyalgia and EDS can also cause crippling fatigue, these points also apply to them.
Want people to get that ME/CFS is a serious illness? This post outlines five ways.
(1) The HIV/AIDS Patient’s Statement
I can tell you without hesitation, chronic fatigue syndrome is much worse than HIV” HIV/AIDS Patient
Have them read a recent piece in the Huffington post written by a person with an aggressive form of HIV/AID’s who is taking care of his partner with ME/CFS. Despite having a scary form of HIV he wasn’t the one he was worried about – he was worried about his partner with the disease with the mild name.
(2) Dr. Klimas’s Statement
“I can tell you if I had to choose between the two illnesses (in 2009) I would rather have H.I.V.” Dr. Nancy Klimas
Dr. Klimas’s famous statement from five years ago in a question and answer session on the New York Times that she would rather have H.I.V. than ME/CFS. She also her HIV/AIDS patients were significantly healthier than her ME/CFS patients many of whom could not work.
(3) The Recent Quality of Life Study
If you still need more ammunition then show them this blog:Chronic Fatigue Syndrome Found Worse Than Diabetes, Multiple Sclerosis, Cancer, etc. which covered a study that found that the quality of life of people with ME/CFS was not just worse but considerably worse than people with other a wide ranges of serious diseases including heart disease and cancer.
(4) The Incredible 1996 Health Status Study
If they’re still skeptical show them the results of this eye-opening study – Health status in patients with chronic fatigue syndrome and in general population and disease comparison groups. This study found that ME/CFS patients scored “significantly lower than patients in all the disease comparison groups…. on virtually all the scales”.. Those disease comparison groups included, by the way, diseases like congestive heart failure, type II diabetes mellitus, acute myocardial infarction and multiple sclerosis.
(5) Check Out the CDC Economic Losses Study
check out this CDC study which showed that economic losses due to ME/CFS in the state of Georgia alone are over a $1 billion a year.
(6) The Nuclear Option: The ME/CFS and FM Symptom Thread
If you to try one last option – use the nuclear option – the symptom description thread . This option is not recommended for children, the fragile or people prone to depression. They may never look at you the same again but they will get a good sense of what ME/CFS and/or FM can be like.
In Their Own Words: Chronic Fatigue Syndrome and Fibromyalgia Patients Describe Their Symptoms
(7) (Bonus) If They Think You’re Just Depressed
Finally if they or anyone else thinks you’re just depressed refer them to this blog – How to Prove to Your Doctor You’ve Got Chronic Fatigue Syndrome (ME/CFS) And Are Not Just Depressed – which shows that symptoms of depression are radically different from those of ME/CFS.