Stop the War against Patients with Intractable Pain

I’m excited that KevinMD.com has published another one of my essays!

Stop the war against patients with intractable pain

This is an emotional appeal for doctors to push back against the intrusion of politicians, bureaucrats, and administrators into our pain care.

I’ve written it as an open letter to the courageously ethical and compassionate doctors still prescribing opioid medication when necessary.

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18 thoughts on “Stop the War against Patients with Intractable Pain

  1. BirdLoverInMichigan

    Great essay, Zyp. Could you send it to one of the Trumps? The President has taken up the case of Charlie Guard, the poor little boy in England, who’s facing a state sanctioned death sentence.

    Who knows, maybe he’d listen?

    Liked by 2 people

    Reply
    1. Zyp Czyk Post author

      Thanks so much!

      I’m surprised that KevinMD published it because I openly talk about ending my life if I’m cut off. The fact that they did makes me think that the editor is on our side on this issue.

      Of course, none of this impacts the folks setting up these restrictions – they seem completely unaware that the results of their policies are suicides of pain escape.

      Liked by 1 person

      Reply
  2. scott michaels

    Thank yoy
    my problem is kaiser. for 7 years i have been a A high dose patiemt. IT WAS CONSIDERED MEDICALLY NECESSARY BECAUSE THATS HOW MUCH MEDICATIo rON WAS NEEDED FOR MOST OF MY PAIN TO GO AWAY. My pain doc. pre kaiser evev gaVE me a metabolism test. this test justified the high dose. when i had to move to kaiser my Pcp also thougjt it was medically necessary. She continued the high dose for years. now because of cdc guideline she was forced to reduce my medication. DRASTICALLY I MIGHT ADD. I APPEALED 3 TIMES, WROTE TO THE CEO AND THEY ALL SAY ITS NOW NOT MEDICALLY NECESSARY. MY PAIN IS NOW MUCH GREATER. THEY PUSHED PHYS THERAPY AND EPPIDURSLS AND FACET INJECTION. I HAVE DONE ALL OF THAT YEARS AGO. IT WAS NO HELP. I WENT ANYWAY AND THEIR PAin dr said. not to do them again if no help. “YOURE JUST WHAT KAISER IS CALLING COLLATERAL DAMAGE” I GASPED AND SAID ” NO, MYSELF ALONG WITH THE MILLIONS OF OTHER KAISER PATIENTS YOU ARE DENYING PAIN MEDICATION ARE JUST HUGE BONUS MONEY FOR THE EXECUTIVES* I ESTIMATED THE MATH AND THE AMOUNT OF PATIENTS THEY CLAIM TOOK PAIN MEDICATION MONTHLY AND AVERAGED JUST A 40% CUT (IN MANY CASES ITS 80%) IN PAIN MEDS AND THE SAVINGS FOR KAISER IS IN THE BILLIONS OF DOLLARS, YES BILLIONS. THE EXECUTIVES SEE THE DOLLAR SIGNS NOT THE PATIENTS NEEDS. WERE ALL GROUPED AS ONE BECAUSE OF THE CDC GUIDED LINES AND THE LETTER FROM THE SURGEON GENERAL. THATS THEIR WAY TO JUSTIIFY THEIR HORRENDOUS ACTIONS. HEY I GUESS IF I I WERE IN THEIR SHOES AND I COULD GET A MULTIMILLION $ BONUS BASED OF COST CUTTING AND PROFIT ( AS A NON PROFIT CORP. THEY MUST SPEND THE MONEY AND BONUSES ARE JUSTIFIED EXPENSES FOR THE IRS) I WOULD DO IT TOO.
    ESPECIALLY IF I DIDNT NEED THE MEDICATION. OH THEYRE THE DOCTORS THEY JUST HAVE FRIENDS WRITE THE PRESCRIPTIONS.
    THE GUIDELINES MUST BE ELIMINATED UNTIL THEY CONSIDER THE DAMAGE AND SUFFERING TO THE CHRONIC PAIN PATIENTS THAT TAKE THEIR MEDICINE AS DIRECTED, PASS THEIR INSULTiNG URIN TESTS, DONT DOCTOR SHOP. AND
    MONITOR THE FINANCIAL GAINS THE INS. COMPANIES RECIEVE AND HOW THEY MUST USE THAT EXTRA MONEY FEOM THOSE PATIENTS THAT ARE PROVEN TO BE ILLEGITIMATE. IT IS PHYSICALLY IMPOSSIBLE FOR A MEDICATION TO BE MEDICALLY NECESSARY FOR 7 YEARS DUE TO SEVERE CERVICAL STENOSIS, SPONDYTLIS, ARTHRITIS ON T4 FROM A FRACTUE 30 YRS AGO, DEGENERATIVE DISC DESEASE JEART AND LIVER DESEASE AND EXTREME PAIN IN FEET AND KNEES FROM PSUEDO GOUT.
    IN THE APPEALS THE POWERSTHAT BE JUSTBSAY THE LOOKES AT MY MEDICAL RECORDS AND DETERMINED THE DOSES ANE “NOT MEDIICALLY NECESSARY* IVE AGES AND THE PROLEMS HABE ONLY WORSENED OVER THE YEARS. JUST IMPOSSIBLE. NOW O LAY HERE IN ALMOST THE SAME PAIN I WAS IN WHEN THE PROBLEMS STARTED. I STILL TAKE WHAT I GET AS DIRECTED.BIF I WERE A DRUG ADDICT, I WOULD BET IN NO PAIN FOR ABOUT A WEEK, THEN SEARCH THE STREETS FOR SOMETHING ELSE TO SATISFT THE CRAVINGS. I DONT BECAUSE I AM DEPENDENT NOT A ADDICTED JUNKIE. WHY CANT THEY JUST UNDERSTAND THIS. IT IIS JUST COMMON SENSE. I AM POSITIVE THE POWERS THAT BE COULD GET A LIST OF PATIENTS THAT HAVE BEEN ON LONG TERM OPIOID THERAOY AND JUSTASK IF OUR MEDICINE HAS BEEN REDUCED OR CUT OFF, IF SO HOW IS IT AFFECTING YOU AND WHAT ARE YOU DOING ABOUT IT.I AM CONFIDENT
    WE WOULD BY A LARGE % THE PAIN IS UNBEARABLE, SOMETIMES SUICIDE IS CONSIDERED AND IF I WAS ABLE TO GET THE DOSES THAT WORKED FOR US OUR QUALITY OF LIFE WOULD BE SO MUCH BETTER.
    THANKS AGAIN FOR THE SUPPORTUME AND SORRY FOR THE SPELLING ERRORS IM IN BED DOING THIS ON MY PHONE CAUSE I CANT SIt up. I TRIED TO HELP MY WIFE AND VACCUME YESTERDAY AND THE ACTIVITY MADE NY NECK FEEL LIKE THERE IS A 6 INCH KNIFE HITTING MY CERVICAL SPINE. THATS DOESNT HAPPEN WITH THE RIGHT DOSAGE.

    Liked by 2 people

    Reply
    1. Zyp Czyk Post author

      What infuriates me most is that we are considered acceptable “collateral damage ” in their ever-failing war on drugs.

      Pain patients are considered less important than addicts, for whom all these restrictions are being put in place.

      Liked by 1 person

      Reply
  3. scott michaels

    every person in pain and every family must write to fda and cdc snd thier ins. co.
    let them know your pain theyve inflicted. how your bedridden because ilof them anfd yhat you knotw that ins companies are in it for the billions of dollars theyre saving. how aaPROP IS FILLED WITH OWNERS OF REHAB FACILITIES WITH A 3% DUCCESS RATE. AND MOST IMPORTANT IF THEY REALLY CARED ABOUT DRUG ADDICTS THEY KNOW THERE IS A DIFFERENCE BEYWEEN US AND THEM ..OUR MEDICATION LAST A MONTH THEIRS LAST A DAY TO A WEEK. THEN HIT THE STREETS. LASTLY TGEY KNOW WITH AN ADDICT NO AMOUNT OF OPIOIDS IS GOOD FOR THEM NOTHING.
    SO PLEASE STOP COMOARING US ANS STOP OUNISHING US ABS USING OUR PAIN FOR YOUE FINANCIAL GAIJ!O MATTER WHAT. I DO KNOW RECOVERING ADDICTS THAT ARE SERIOUS ABOUT THEIR RECOVERY. THEY WOULD NOT TAKE A PAIN PILL OR GO UNDER FOR SURGERY. THEY FERA THE ADDICTION THAT MUCH. ITS A LOCAL ANESTETIC OR N

    Liked by 2 people

    Reply
  4. Candi Simonis

    What these Government agencies are doing is fighting chronic pain disease patients. We use legitimate prescription medications for diseases. The crisis is that they are targeting CHRONIC PAIN PATIENTS. Chronic pain is now the epidemic. We are being caterogized and descriminated against for a medication we require to reduce our pain. No other chronic disease patient is targeted for their use of a prescription medication.
    What about the good of opioid medications. They are lifesaving medications for millions of Americans who live in constant, debilitating, chronic pain.
    Though the number of prescribed opioids are down, the overdose deaths are “reportedly, at an all time high”. So this system is not working.
    When a death does occur, there is no specific testing as to what opioid drugs attibuted to the death. Whether there were other drugs or alcohol in the system, or whether the specific “medication” was for that individual, was it illegally manufactured heroin, fentynal or carfentynal.
    The misuse of medication by legitimate chronic pain disease patients is .02-.6 %. It is use of illegal opioids and misuse of legal opioid medications that lead to abuse by citizens.
    The FDA, DEA, CDC and all other Government agencies need to go after the illegal fentynal and heroin producers and manufacturers, also, methamphetamine, cocaine and all other illegal drugs. Addicts will always have the illegal drugs and find a way to get them.
    Why is it that our physicians are no longer able to Doctor us? Why is it that these agencies can now Doctor us and practice medicine without a medical license? What has happened to Doctor/patient confidentiality. It no longer excists. Pharmacists, insurance companies and these Government agencies are now able to decide what us patients actually need when it comes to our medications. They are policing our physicians. I believe it is up to our physicians to treat us adequately and humanely with medication, so many of us desperately need, for our disease.
    This targeting is wrong! It is discrimination against legitimate chronic pain disease patients who use our MEDICATION responsibly.
    Addicts will find and use the illegal drugs of their choice. We pain disease patients are not addicts, we are PATIENTS, with incurable diseases. Medications are readily available to us for our conditions, that happens to fall into the same category as the illegal drugs.

    Liked by 2 people

    Reply
      1. Candi Simonis

        I posted on his wall..
        I have emailed EVERYONE POSSIBLE. every government agency, dea, medicare, Medicaid, dhs, fda, trump, the government in Wisconsin, I even post it or send to anti- opioid agencies, etc… I keep flooding them daily with this email.
        We need to be heard….

        Liked by 2 people

        Reply
        1. Zyp Czyk Post author

          I appreciate your advocacy efforts.

          Letters are probably one of the most effective methods, petition-signing probably the least, so you are definitely adding to the resistance.

          Liked by 1 person

          Reply
    1. Patty Rosen

      Aim a bit overwhelmed by all the agencies that are dealing with this issue. Is there a site that lists the agencies, and who to write to? I’m a writer and feel strongly about adding my voice for the sake of all of us who are dependent on Opiods for any semblance of quality of life.

      Like

      Reply
      1. Candi Simonis

        Patty,
        I write every one. Anytime there is a place to email. Government, city officials, dea, hhs, cdc, reporters etc…make comments…

        Like

        Reply
  5. Kathy Carter

    I’m in the same boat!!! I will stop eating and die if they take the opiates from me. I have had RA for about 25 years I have taken the opiates just to have a life!!

    Liked by 1 person

    Reply
    1. Patty Rosen

      I’m in your boat! Chronic pain and can only tolerate Vicodan. I’m planning my death if my doc stops Rxing for me. I’m a retired RNP, pushing 80, and without Vicodan am bed ridden. With Vicodan, 40 mg/day, can walk, play cards, and write. I’d love to put my anger, frustration, and writing ability to good use against the DEA. Any place else?

      Liked by 2 people

      Reply
  6. IMG

    ” NOW NOT MEDICALLY NECESSARY” I believe this is what all above alphabet agencies are aiming for with labeling anyone on opioids longer than 90 days as having an “Opioid Use Disorder ” , and myth like “opioids don’t work long term,” “high dose” opioids are anything over 100MME, etc…”removing pain as the 5th vital sign, removing pain questions from hospital surveys, “pain is all in your head ” ..pushing procedures and if refused “non-compliant”.
    All of us are affected by this, either ourselves or a family member. All suffer when pain is untreated or undertreated. We have to continue to present the real life stories and put a face on the real people who are suffering….
    This blending of two very separate issues into one…with no separation of “addicts” or “patients”
    Then the DEA can go after any doctor for prescribing “not medically necessary” opioids. We have to put human faces on this before we are permanently cannon-balled back into time. They are aiming for pre-decade of pain policies-it’s not too late to stop it.

    Liked by 1 person

    Reply
    1. Zyp Czyk Post author

      Yes, combining the numbers for abusive/recreational/illicit opioid use with prescribed opioid medication use is causing big problems.

      That was a brilliant move by the addiction-recovery industry to cast a wide net over ALL opioid users to create more customers for their unregulated and unscientific “recovery treatment”. Arghh!

      Liked by 1 person

      Reply

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