Without pain relief, patients driven to despair and suicide

As doctors taper or end opioid prescriptions, many patients driven to despair, suicide – By Elizabeth Llorente | Fox News – December 10

Treating America’s Pain: Unintended Victims of the Opioid Crackdown, Part 1 – The Suicides

The national opioid crisis propelled a crackdown on prescription painkillers, causing hundreds of doctors to abruptly reduce or completely cut off their patients’ prescriptions, leaving many among the estimated 20 million Americans who suffer from daily debilitating chronic pain to consider suicide. This is the story of the overlooked victims of America’s opioid epidemic.

I’m tremendously gratified to see this series in a mass media outlet, especially Fox News, which is known for its conservative slant.  

It happened slowly. The pain caused by a 1980 back fracture, the result of a tractor-trailer crash, crippled more and more of Jay Lawrence’s body and spirit.

By 2006, the Tennessee native and Navy veteran’s arms and legs were going numb. The excruciating pain reduced him to tears. Multiple surgeries, chiropractic adjustments, and physical therapy didn’t work.

He finally found solace in prescription painkillers – 120 milligrams a day of morphine. A high dose, but it dulled the pain enough for him to take walks with his wife, shop for groceries, even take in a few movies.

But last February, the pain clinic doctor delivered jarring news: He was cutting Lawrence’s daily dosage, first to 90 milligrams then, in short stages, down to 30 milligrams. The doctor said the reduced dosage was in response to the Centers for Disease Control and Prevention (CDC) prescribing guidelines released in 2016

“The doctor said: ‘You know these guidelines are going to become a law eventually. So we’ve decided as a group that we’re going to take all of our patients down,’” she told Fox News in an interview

So, they decided as a group to let patients suffer even when opioid relief is available. These and many others like them are certainly no longer “healers” – they are judge, jury, and jailer.

Lawrence’s pain returned with a vengeance. He could barely move or sleep. He soiled his pants, unable to make the bathroom in time, Meredith said.

“It feels like every nerve in my body is on fire,” he told his wife.

This is the first of a three-part series on the nation’s struggle to address a crippling opioid crisis, and the unintended victims left in its wake.

That was too much for Lawrence. In March, on the day of his next medical appointment, when his painkiller dosage was to be reduced again, he instead went to a nearby park with his wife. And on the very spot where they renewed their wedding vows just two years earlier, they held hands.

He raised a gun to his chest and killed himself.

Lawrence, who was 58, became one of an undetermined number among the nation’s 20 million chronic pain sufferers who chose suicide after being cut back or denied prescriptions for opioids.

“We have a terrible problem. We have people committing suicide for no other reason than being forced to stop opioids, pain medication, for chronic pain,” said Thomas Kline, a North Carolina family doctor and former Harvard Medical School program administrator

“It’s mass hysteria, a witch hunt. It’s one of the worst health care crises in our history,” said Kline, who has 26,000 Twitter followers, and a website where he publishes the names of those who he said committed suicide after having their opioids cut back or eliminated. “There are five to seven million people being tortured on purpose.”

The CDC doesn’t have numbers of those who commit suicide after having their pain medications cut.

But most of the doctors who spoke to Fox News said they knew of between one and six patients who took their life after losing access to opioid treatment, and being turned away from other doctors who now see prescription painkillers as a hassle.

The CDC only counts what they are interested in, and pain is not on the list. They will not count suicides due to pain, because the CDC is partly to blame. Why would they look for evidence of their own failure and culpability?

Several prominent doctors and pain patient advocacy organizations said they have heard from hundreds who say they have been left in debilitating pain and are considering suicide. The issue earlier this year came to the attention of Human Rights Watch, which launched an investigation.

“Clearly, there are patients now who feel like life is not worth living if they return to living in pain,” said Diederik Lohman, director of Health and Human Rights for Human Rights Watch.

Many of the patients we spoke to are very law-abiding, and would turn to suicide before going to the street to get illicit drugs. The government has a duty to respond to the overdose crisis but to do so in a way that is harming people who have a legitimate medical issue is a human rights issue.”

The CDC released a report Nov. 30 showing that despite a drop in painkiller prescriptions over the years, the drug overdose rate continues to soar, with the growth driven by the illicit opioid fentanyl and its cousins. It is a trend that has held for several years.

People with pain shouldn’t have to suffer because people without pain are abusing opioids,” said Cynthia Toussaint, a former ballerina from California, who has Complex Regional Pain Syndrome (CRPS), which left her bedridden for 10 years, and unable to speak for five. “Pain patients don’t want to take opioids any more than cancer patients want to use chemotherapy. However, many people with pain need opioids to function physically

At a recent American Medical Association (AMA) meeting, the group’s president, Dr. Barbara McAneny, spoke of how an advanced prostate cancer patient of hers attempted suicide after he was denied opioids by an insurer.

“The pendulum swung too far when pain was designated a vital sign, and now we are in danger of it swinging back so far that patients are being harmed,” she said, according to published reports.

ISSUES WITH CDC GUIDELINES

Federal officials have said the CDC guidelines weren’t intended to disrupt the proper prescribing and use of opioids.

“We’re not telling any doctor that they can’t make a legitimate prescription,” then-U.S. Attorney General Jeff Sessions told Fox News in an interview before he left office. 

“Maybe some doctors are getting too cautious. We don’t know.”

They don’t know because they don’t want to know and are deliberately leaving these suicides uncounted.

Sessions acknowledged “opioid prescribing can be essential for people,” and said, “it’s very clear that people with serious pain problems are in need of real significant pain relief and sometimes [opioids] are the only thing that will provide relief, and it is absolutely legitimate to prescribe it.

That may be what he says now, but it’s certainly not what he was saying “on the job”, when he remarked that people should “just take Bufferin” instead of opioids.

CDC officials added they are also aware chronic pain sufferers have committed suicide in their struggle to get by with fewer or no opioids.

“We have heard about suicides,” said Dr. Debbie Dowell, a senior CDC medical advisor, and lead author of the guidelines on opioid prescribing. “We’ve heard the reports. It’s tragic that anyone takes their life for any reason, including that they had their opioids unilaterally stopped.”

While she says it’s tragic, she’s not taking any action to stop it. It truly is starting to sound like genocide.

Dowell said the scope of suicides caused by under-treatment of chronic pain “isn’t something that’s easy to measure. We’ve looked at how we might measure this. Sometimes patients or their families don’t report it.”

What a ridiculously weak excuse when they manage to report numbers for all kinds of situations that are just as difficult to quantify.

The CDC guidelines focused on primary care physicians and recommended extreme caution in prescribing opioids. It also suggested a maximum daily dosage of 90 morphine milligram equivalents for first-time painkiller patients.

That would be a very high dose for a person who has not developed tolerance from daily use, but it can be less than needed for a long-term maintenance dose to treat chronic pain.

But the guidelines also warned against forcibly tapering or abruptly cutting off severe pain sufferers who have responsibly have taken opioids, noting that a drastic change could lead to withdrawal, and serious illness.

Untreated pain, many health experts say, can also lead to hypertension, more serious pain conditions, and other problems. Health practitioners say this is a plight that could affect anyone — all it takes is a slip, a fall, or a botched surgery that could bring on intense and perhaps long-term pain.

Dowell said patients should be prescribed on a case-by-case basis.

Yet, this is the opposite of how changes are being implemented to establish a single standard for pain from any and all sources.

“We believe everyone deserves effective pain management,” she said. “The CDC guidelines are not a regulation or a law – it’s guidance for providers.”

They say it’s not a law, but the DEA is prosecuting doctors who prescribe more. The evasiveness and lack of responsibility displayed by the CDC are criminal.

It never made a recommendation to take people off medication involuntarily, or to taper down involuntary,” she said. “It was meant to provide updated guidance about the benefits and risks of opioids for chronic pain so that the provider and the patient – together – could make decisions.”

GUIDELINES BECOME ENFORCEMENT TOOLS

The CDC disclaimer was apparently lost among the headlines about the staggering number of deaths due to opioids.

Political leaders and government officials often failed to note the bulk — at least 60 percent,according to the U.S. Department of Health and Human Services — of the overdose epidemic was caused by illicit drugs, not prescription painkillers.

And when officials did address the portion of deaths due to prescriptions, advocates of safe opioid use argue, they often lumped together pain patients and people with addiction who illegally obtained someone else’s prescribed opioids.

That made for a perfect storm, which formed the basis for a slew of hardline state and federal policies, including a Trump administration vow to slash prescriptions by 30 percent over the next three years.

Health care providers and pain patients who have Medicare prescription plans are bracing for January, when the federal insurance program will give its insurers and pharmacists the authority to reject prescriptions that deviate from CDC recommended dosage.

The CDC guidelines were geared to primary care doctors, but they have been hijacked and weaponized as an excuse for draconian legislation,” said Michael Schatman, a clinical psychologist and director of research and development at Boston Pain Care, a multi-disciplinary pain clinic, and editor-in-chief of the Journal of Pain Research. “Illicit opioids, not prescription opioids, are driving overdose deaths.”

The disproportionate focus on prescription painkillers by officials responding to the overdose epidemic, pain specialists and public health researchers say, is in great part why the drug-related death rate continues to climb while legal opioids becomes less available to pain patients.

We’re targeting the most vulnerable and sickest people who have been on opioids a long time,” said Dr. Stefan Kertesz, an addiction specialist and professor at the University of Alabama at Birmingham School of Medicine.

“Insurers are issuing rules that say we won’t cover long-term opioids for anyone over 90 milligrams. Well, five percent of people who receive opioids account for 60 percent of the milligrams prescribed. With so many milligrams going to a tiny group of very sick people, if you can knock a few people off these opioids you can show a big numeric reduction.”

“What we’re really doing is dragging down the dose on the most disabled people,” said Kertesz, who sits on several state opioid safety committees.

Prescription control seems an easy answer to the epidemic, but that’s not stopping addiction.”

CRIES FOR HELP, AND GIVING UP

On social media, comments sections on news sites, and in emails to Fox News, numerous pain sufferers say they have made suicide plans because their health care provider has forcibly reduced their dose to a deficient level, or cut them off entirely. They speak of being treated like drug abusers, submitting to frequent urine tests and pill counts.

“I have been on pain management since 2006,” said a man from Tampa in a Facebook message. “Have a crippling disease that there is no cure for, and can no longer get the medications I need.  A few months ago I was researching death with dignity and other options for assisted suicide if I wasn’t able to get the help needed down the road.”

Some posted comments about a loved one who died by suicide after losing access to a long-term treatment for pain, and finding it intolerable to continue suffering.

Others said their spouse’s suffering, together with the frustration and anguish of being turned away or undertreated by doctors, was the reason they came around to accepting their loved one’s suicide plan.

Lawrence’s doctor did not respond to email and phone requests to comment for this story.

Coward.

“I think about suicide every day,” said Dawn Anderson, a former trauma nurse from Indiana, whose doctor cut her opioid dosage after his office was raided by the DEA.

“I recently wrote a suicide note to my family,” said Anderson, a diabetic whose legs were both amputated below the knee. “They have seen all I have gone through. I want to live. But not like this.”

Anderson, 53, now finds it too painful to stand on prosthetics because of what she says is undertreated pain, and is confined to a wheelchair.

Anderson’s doctor did not respond to requests for comment.

They are all cowards.

CALLING FOR TOUGHER ANTI-OPIOID POLICIES

Not everyone agrees the problem is the cutting back of legal opioid prescriptions.

Dr. Andrew Kolodny, who directs opioid research at Brandeis University’s Heller School for Social Policy and Management, believes government policies on opioids need to be even tougher.

Then the article continues with Kolodny’s crazy ideas in an attempt to show “the other side” of the opioid issue.

I’m not going to read or give excerpts of it because it’s the same nonsense he always says and has been saying for over a decade.

FEDS SAY THEY’RE AT WAR

Federal and state officials at the agencies at the forefront of the fight against opioids – including the Drug Enforcement Agency (DEA) – were hard-pressed to provide details to Fox News about just how many overdose deaths involved those legitimately prescribed opioids.

That’s because they count each overdose multiple times for each drug found in the body. Because there are usually multiple substances involved, the “opioid overdose” numbers are completely muddled and cannot be used to determine specific problems.

A report by the Massachusetts Department of Public Health, widely cited by many pain experts, said that among 477 people whose deaths were opioid‐related in 2018, 90 percent, or 423 of them, tested positive for fentanyl – a telltale sign of illegal opioid use.

Pain management experts said they share the concern and alarm over the terribly high percentage of drug overdoses.

“I share the nation’s concern that more than 100 people a day die of an overdose. But my patient nearly died of an under-dose,” said McAneny, the AMA president.

6 thoughts on “Without pain relief, patients driven to despair and suicide

  1. peter jasz

    The Take Away:

    “That was too much for Lawrence. In March, on the day of his next medical appointment, when his painkiller dosage was to be reduced again, he instead went to a nearby park with his wife. And on the very spot where they renewed their wedding vows just two years earlier, they held hands.
    He raised a gun to his chest and killed himself.”

    ” …. an undetermined number among the nation’s 20 million chronic pain sufferers who chose suicide after being cut back or denied opiate prescriptions.”

    SUICIDE, was chosen as a result of astonishing, daily, hourly, minute/minute pain intensity so severe, so damning, vicious and unrelenting -that one would do ANYTHING for relief; temporary, or permanent.
    So please, show some (deep) respect for those who “chose” suicide for nothing other than to end the unimaginable suffering.
    For those utterly cowardly (indifferent) physician’s who tapered/ withdrew opiate therapy to those so deeply, desperately in need, one again, should be rounded up, named, charged, convicted -and jailed- for GROSS Crimes Against Humanity. Cowardly, disgraceful POS’s.

    “We have a terrible problem. We have people committing suicide for no other reason than being forced to stop opioids, pain medication, for chronic pain,” said Thomas Kline, a North Carolina family doctor and former Harvard Medical School program administrator

    “They” are being forced into suicide because ‘medicine’ has NO idea of tissue/nervous system injury-disease; how to identify/diagnose, track or correct. And if “they” do, it;s not being shared -handed down So, until the medical community (at large) does ‘figure-it-out’, you give the (deeply) suffering pain-patient what’s known to work/help. And let’s be very clear, morphine/oxycodone must be called upon in such cases. Nothing else (yet) has proven remotely comparable -or efficacious.

    “It’s mass hysteria, a witch hunt. It’s one of the worst health care crises in our history,” said Kline, who has 26,000 Twitter followers, and a website where he publishes the names of those who he said committed suicide after having their opioids cut back or eliminated. “There are five to seven million people being tortured on purpose.”

    I admire and respect men as Dr. Kline who have the clarity and courage to speak some real ugly truths, as quoted:

    ” …There are five to seven million people being tortured on purpose.”

    He’s not only correct, but we must really pause, and read that statement again -and let it sink in.

    peter jasz

    Liked by 2 people

    Reply
  2. Jerry Buehler

    I have been on opioids since 2006 at levels above 550 MME’s and I am fine and have basic function till they started reducing my levels. I am now at 180 MME and any lower and I know I will be killing myself. This is insane, I was actually taking less MME’s before the mandate because I guess my body was healing my back issues and my withdrawal symptoms were some flu like symptoms. I question this whole addiction and tolerance theory about them that make it seem like it is life threatening. Ya it may be uncomfortable but something else is wrong if you have to start taking more and more to be ” comfortable ” . Something else is going on that people are taking too much of this stuff and killing themselves. Many people take large amounts of these drugs and do fine. I am in trouble because nothing else will kill my pain in any combination. Someone please stop this before it is to late for me ! Please

    Liked by 1 person

    Reply
    1. Zyp Czyk Post author

      I’m so sorry to hear how you are suffering! All I can say is that I truly do see the tide turning and if you can just hang on for a while, reason will return to our medical care of pain.

      With the recent HHS report (posted here in 3 parts), sanity seems to be shining through, but it will take a while to get this huge bloated inappropriate drug-war turned away from pain patients.

      Like

      Reply
  3. Karen barnes

    I have suffered chronic pain from an mva accident in 2008. I was pushed into an 18 wheeler. I tried Everything!!
    In 2018, the ER didn’t tell me I had a kidney stone. It got stuck in my bladder, finally passing the stone. I be came inconsistent and peeing 20 times per day. Adding burning pain 24 hours a day. The pain was Suicidal pain, if I moved an inch, in was hell. I had 5 procedures to limit this problem. Medtronic neuro stimulator was placed 2 months ago.
    I don’t want social security, I enjoy working, even though its only 10-15 per week now. I have a masters degree and every 5 years, I get to have sugergy for battery replacement. I didn’t choose either situation. When the doctor’s failed me in January 2018. It’s crippling pain..feels like a UTI. I don’t give up, but I can’t afford medical marijuana. It’s 200 per month in Pennsylvania and that is with an amazing Pain Management Team.

    Liked by 1 person

    Reply
    1. Zyp Czyk Post author

      What an awful situation! I really believe the situation is starting to change a little as more people are becoming aware of horrible stories like yours. Things will get better for us as our stories of enforced misery spread. Perhaps you could contact a local newspaper to tell your story?

      Like

      Reply

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