What does Dysautonomia feel like?

Hot? Cold? Haywire? What dysautonomia feels like. | The Ehlers Danlos Society  – Oct 2018

We asked our Ehlers-Danlos Society social media community, “What does your dysautonomia feel like?”  We received over 100 responses…

Our community shared stories of unrelenting fatigue and debilitating brain fog. We heard about weakness, racing hearts, and frustration. An overwhelmingly common experience was the feeling of a body out of control; feeling too hot or too cold constantly—or even both at the same time.

Here’s what our community had to say: What dysautonomia feels like

Other thoughts?

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