Ehlers-Danlos Syndrome

The EDS advocacy site, Ehlers-Danlos Society, is where you can find overviews of EDS along with more detailed information. Also, the site includes updated research presented during the annual conference.

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For an overview of genetic symptoms and diagnosis, the National Institute of Health (NIH) has published a “book”:

Ehlers-Danlos Syndrome, Hypermobility Type

There is also a long PubMed PMC article listing symptoms in great detail:

Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations

For all diagnostic criteria of this multi-faceted disorder in one place, here is a document created by another Inspire member:

EDSDiagnosticTool

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Pain arising from physical issues of EDS

Unique Pain of Ehlers-Danlos Syndrome

PubMed: Pain in Ehlers-Danlos Syndrome Common & Severe

Headaches Related to EDS

EDS and Anesthetics – People with EDS are often extremely resistant to local anesthetics

Other EDS reference pages from this blog

Ehlers-Danlos Syndrome Overview

Ehlers-Danlos Society Resource Guides

EDS Genetics

Benign Hypermobility Syndrome vs EDS

How to get EDS Diagnosis, Pain Treatment, SDDI