Ehlers-Danlos Syndrome

The EDS advocacy site, Ehlers-Danlos Society, is where you can find overviews of EDS along with more detailed information. Also, the site includes updated research presented during the annual conference.

For an overview of genetic symptoms and diagnosis, the National Institute of Health (NIH) has published a “book”:

Ehlers-Danlos Syndrome, Hypermobility Type

There is also a long PubMed PMC article listing symptoms in great detail:

Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations

For all diagnostic criteria of this multi-faceted disorder in one place, here is a document created by another Inspire member:


Pain arising from physical issues of EDS

Unique Pain of Ehlers-Danlos Syndrome

PubMed: Pain in Ehlers-Danlos Syndrome Common & Severe

Headaches Related to EDS

EDS and Anesthetics – People with EDS are often extremely resistant to local anesthetics

Other EDS reference pages from this blog

Ehlers-Danlos Syndrome Overview

Ehlers-Danlos Society Resource Guides

EDS Genetics

Benign Hypermobility Syndrome vs EDS

How to get EDS Diagnosis, Pain Treatment, SDDI

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