6 thoughts on “EDS Diagnostic Tool

    1. Zyp Czyk Post author

      I haven’t seen an update of this document, but it’s still valid.

      All these are signs pointing to EDS and it’s the cumulative impact that leads to a diagnosis. To get my genetic diagnosis, I went through a similar list I gleaned from the PubMed articles about Ehlers-Danlos and wrote down anything I experienced related to the symptoms and signs I found listed. The Stanford geneticist apparently read through my 3-page document (with pics) and only did a 20-minute exam to reach her diagnosis.

      If more people would document their symptoms according to this list, it would be easier for them to be diagnosed.

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