Here is a document created by another Inspire member, with a list of all diagnostic criteria of this multi-faceted disorder:
EDS Diagnostic Tool
Here is a document created by another Inspire member, with a list of all diagnostic criteria of this multi-faceted disorder:
It says this article was written by an inspire member. Is it possible to find out who wrote it and when?
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Her Inspire user name is “SlapASmileOn” and she wrote this about 1.5 years ago.
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Thank you!
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Hi Zyp, Do you know if any of his has changed with the new nosology for EDS
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I haven’t seen an update of this document, but it’s still valid.
All these are signs pointing to EDS and it’s the cumulative impact that leads to a diagnosis. To get my genetic diagnosis, I went through a similar list I gleaned from the PubMed articles about Ehlers-Danlos and wrote down anything I experienced related to the symptoms and signs I found listed. The Stanford geneticist apparently read through my 3-page document (with pics) and only did a 20-minute exam to reach her diagnosis.
If more people would document their symptoms according to this list, it would be easier for them to be diagnosed.
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Thank you so much!!
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