6 thoughts on “EDS Diagnostic Tool

    1. Zyp Czyk Post author

      I haven’t seen an update of this document, but it’s still valid.

      All these are signs pointing to EDS and it’s the cumulative impact that leads to a diagnosis. To get my genetic diagnosis, I went through a similar list I gleaned from the PubMed articles about Ehlers-Danlos and wrote down anything I experienced related to the symptoms and signs I found listed. The Stanford geneticist apparently read through my 3-page document (with pics) and only did a 20-minute exam to reach her diagnosis.

      If more people would document their symptoms according to this list, it would be easier for them to be diagnosed.



Other thoughts?

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.