Here are links to articles in the blog with annotated scientific publications relating to various aspects of Ehlers-Danlos Syndrome (EDS)
- The Ehlers-Danlos National Foundation
- EDS 2014 Physicians Conference Slides Available
- Reference: Ehlers-Danlos Syndrome, Hypermobility Type – Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations
- Pain in ehlers-danlos syndrome is common – large study – “Pain in Ehlers-Danlos Syndrome Is Common, Severe, and Associated with Functional Impairment”
- Impact of pain with EDS
- Management of pain and fatigue in EDS Hypermobility type – “EDS-HT is considered to be a severe chronic musculoskeletal disorder.“
Headaches & CerebroSpinal Fluid pressure
- Ehlers-Danlos and Cerebrospinal Fluid Problems
- Headaches from spontaneous spinal CSF leaks and intracranial hypotension – Both high & low CSF pressure can cause headaches
EDS and POTS/Dysautonomia
- Dysautonomia linked to Ehlers-Danlos syndrome
- EDS and Postural Tachycardia Syndrome
- POTS: Association with EDS and Orthopaedic Considerations.
Neurologic and Neuromuscular Features of EDS
- Neurological manifestations of Ehlers-Danlos Syndrome
- Neuromuscular features of Ehlers-Danlos syndrome
EDS and “Benign Joint Hypermobility Syndrome”
- Benign Hypermobility Syndrome vs EDS – This excellent summary writeup is by Shani Weber.
- Joint hypermobility syndrome: easily missed? – JHS is indistinguishable from the hypermobility type of Ehlers-Danlos syndrome
- Dermal Ultrastructure in Low Beighton Score EDSH & BJHS – Skin studies show “Benign Joint Hypermobility Syndrome” and EDS patients both had dermal abnormalities that could eventually be used for diagnosis.
Relationship to anxiety and depression
- Brain Structure and Joint Hypermobility (EDS) – Hypermobility/EDS leads to not only physical instability, but emotional/mental instability as well, and more severe Hypermobility corresponds to greater differences in brain structure.
Relationship to other disorders
- EDS III: possible unifying concept for various functional somatic syndromes – This excellent article explains all the possible syndromes that could be caused by or related to Hypermobility, like Fibromyalgia, POTS, and Chronic Fatigue
- Study of connective tissue is shedding light on pain – many systems of the body may be affected by mechanical changes in connective tissue
- Understanding Your Fascia – Fascia is made up primarily of densely packed collagen fibers that create a full body system
- Collagen: More Powerful Than Muscle