Ehlers-Danlos Society Global Learning Conference – 2017

Links to the best and latest information about EDS presented by over 20 experts on the far-reaching implications of this connective tissue disorder.

These presentations from the 2017 Ehlers-Danlos Society Global Learning Conference are provided for your personal use.

The following presentations were those available to us as of September 21, 2017.

Dr. Paul Agnew

• Soft Tissue Surgery in Collagen Disease (PDF)

Carol Boggs and Anne Rodigerehlers-danlos.com/2017-eds-global-conference

• Postural Solutions for Instability (PDF)

Maggie Buckley

• Newly Diagnosed EDSers 2017 (PDF)

Dr. Andrea Bulbena Cabre

• What’s Inside the Zebra’s Mind (PDF)

Dr. Antonio Bulbena-Vilarrasa

• Progress in the Psychiatric and Psychological Dimensions of EDS: “It is not just in your mind” (Version 1 – PDF)
• Progress in the Psychiatric and Psychological Dimensions of EDS: “It is not just in your mind” (Version 2 – PDF)

Dr. Heidi Collins

• Diet & Supplementation for Persons with Ehlers-Danlos Syndrome – EDS You are NOT what you eat (PDF)

Dr. Pradeep Chopra

• Management of complex pain in children and adults with Ehlers-Danlos Syndromes (PDF)

Jeannie Di Bon

• Strengthen Your Hypermobile Core with Pilates (PDF)

Dr. Adam Farmer

• Gastrointestinal Symptoms in EDS (PDF)

Dr. Clair Francomano

• Classical Ehlers-Danlos Syndrome In Children (PDF)
• Classical Ehlers-Danlos Syndrome (PDF)
• Ehlers-Danlos Syndrome Rare types (PDF)

Prof. Rodney Grahame

• An Old-Timer’s View of the New EDS Criteria (PDF)

Dr. Howard Levy

• Hypermobile EDS in Adults (PDF)

Dr. Anne Maitland

• Mast Cell Activation Disorders (PDF)

Dr. John Mitakides

• TMJ and CCI in Chiari, Hypermobile and EDS Patients (PDF)

Linda Neumann-Potash

• Discussing Pain—How to help your health care provider help you (PDF)

Jason Parry

• Dislocation/Subluxation Management—Or—’I’m Just Popping Out for a While!’ (PDF)
• Practical Pacing and Fatigue Management (PDF)

Dr. Alan G. Pocinki

• Evaluation and Management of Autonomic Dysfunction in Patients with Ehlers-Danlos Syndrome (PDF)
• Evaluation and Management of Fatigue in Patients with Ehlers-Danlos Syndrome (PDF)

Jon Rodis and Kathleen Kane

• Applying for Disability (PDF)

Dr. Leslie Russek

• Developing a Self-Management Plan for hEDS (PDF)
• Self-Care for Kids & Teens with Hypermobility Spectrum Disorder (PDF)

Ellen Lenox Smith

• Ehlers-Danlos Syndrome and Medical Cannabis (PDF)

Shani Weber

• Create More Effective Doctor Appointments: More than 100 tips you can start using today! (PDF)
• Start an EDS Support Group + Raise EDS Awareness = Friends and Doctors Who “Get It”! (PDF)

Some sessions were also video-recorded; once the finished versions are available, those videos will be posted in our YouTube channel and linked here.

The presentations and materials remain the intellectual property of the presenters, and all rights are reserved to them. The Society does not control and is not responsible for the content of presentations.

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These links are subject to change – you can check the current page of the Ehlers-Danlos Society for the latest version:

https://www.ehlers-danlos.com/2017-eds-global-conference/