Sara Geurts thinks her wrinkles are “the most beautiful thing ever.” Continue reading
Pain Management in Patients With Hypermobility Disorders: F… : Topics in Pain Management – Topics in Pain Management: July 2017 – Linda Stapleford Bluestein, MD – Continuing Education (CME) Activity
Learning Objectives/Outcomes: After participating in this CME/CNE activity, the provider should be better able to:
- Describe the various types of hypermobility.
- Identify signs and symptoms of hypermobility spectrum disorders.
- Develop treatment plans for patients with hypermobility disorders that address their specific and unique needs.
Chronic musculoskeletal symptoms account for a vast amount of health care utilization and are a leading cause of impairment and deterioration of quality of life. Continue reading
Lab-grown cartilage as strong as natural | Science Codex | June 17, 2017
This could finally be a solution to replace defective deteriorating cartilage in joints of patients with connective tissue disorders. Perhaps the same methods could eventually be used to grow sturdy tendons and ligaments for us too.
Lab-grown cartilage grown shows similar mechanical and chemical properties to natural cartilage, which allows our joints to move smoothly, according to a new study.
The biomedical engineers from University of California, Davis, created a lab-grown tissue similar to natural cartilage by giving it a bit of a stretch, they wrote in their Nature Materials study. Continue reading
Lactate has become a big deal in both chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM). A by-product of anaerobic energy metabolism, lactate ordinarily gets pumped out of our cells in large amounts during exertion.
The lactate findings suggest that the energy needs of ME/CFS/FM patients are largely being addressed by glycolysis or anaerobic energy production.
Anaerobic energy production plays an important role in energy production, but when aerobic energy production is not available and it becomes the major source of energy it produces metabolites that produce the burning muscles, fatigue and other symptoms we associate with over-exercise. Continue reading
Chronic fatigue in Ehlers–Danlos syndrome—Hypermobile type – Hakim – 2017 – American Journal of Medical Genetics Part C: Seminars in Medical Genetics – Wiley Online Library
It is the authors’ opinion that the criteria used for diagnosing CFS and hEDS are inadequate and contribute to diagnostic confusion.
To meet a diagnosis of CFS, fatigue must be “unexplained by other conditions.”
Therefore, a diagnosis of hEDS must exclude a diagnosis of CFS.
However, hEDS is likely to be substantially under-diagnosed and it is likely that some patients diagnosed with CFS may meet or would previously have met the criteria for diagnosis of hEDS. Continue reading
EDS Medical Articles – from the Ehlers-Danlos Society
They list a good collection of scientific articles about EDS – here are my favorites:
Did Elvis have EDS? – Practical Pain Management – Forest Tennant, MD, DrPH – April 2017
From Letters to the Editor:
After I finished reading the article about Elvis Presley’s medical history by Forest Tennant, MD, DrPH,1 I wondered if he might have had Ehlers-Danlos syndrome (EDS)?
The facts seem consistent with many of the medical issues common with this connective tissue mutation, including the stretched body parts, an inability to detox chemicals, self-medication, and an apparent need for greater pain relief. Continue reading
Ehlers-Danlos Syndrome or Disease? – Journal of Syndromes – Published in Avens Publishing Group, May 2016
Although first described in 1892 by Tschernogobow in Moscow, the medical history of Ehlers-Danlos syndrome (EDS) begins with Edward Ehlers’s description in 1900 in Copenhagen.
Several avatars would come to stymie its identification to this day, despite its frequency, and foster confusion with other pathologies.
The first of these is the description by Alexandre Danlos (1908), who particularly emphasized a sign: excessively stretchable skin which would become solidly anchored in the minds of doctors who, even today, use it to rule out the diagnosis if it is not found. Continue reading
The Reality of Living With Fluctuating Fibromyalgia Symptoms | The Mighty – April 2017 Mattea Sykes
This article was mistitled because it is actually about EDS.
Many people start each day with a refreshing shower, and then go to work or achieve their tasks for the day, thinking of it as nothing more than a quick way to wake up.
But for some people, like those with Ehlers-Danlos syndrome, fibromyalgia, multiple sclerosis, rheumatoid arthritis or lupus SLE, it is the entire day’s chore, hard work and achievement that involves a great deal of time, pain, effort, endurance and spoons.
Here is a summary of two consecutive days from this week to show the reality of living with a fluctuating condition.
Mattea goes on to deliver a blow-by-blow narrative of a couple of days with EDS: The Reality of Living With Fluctuating Fibromyalgia [EDS] Symptoms
This turns out to be a lesson in BS detection: an old article citing decades-old research repurposed as though new.
The association between anxiety disorders and pain may be stronger than the association between depression and pain. Learn more about the most common anxiety disorders seen in pain patients, as well as new DSM-5 diagnostic criteria.
I checked the 62 references supplied at the end of the article and found that half are from the previous century: Continue reading