Category Archives: Chronic Illness

Autoimmunity Causes Exertion Problems in CFS, FMS, POTS

Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue Syndrome, Fibromyalgia and POTS – Health Rising – by Cort Johnson | Aug 16, 2017

Researchers and doctors get interested in ME/CFS in different ways. Many have a personal connection, but for David Systrom,  a pulmonologist, it was all about demand.

He didn’t seek chronic fatigue syndrome patients out – quite the contrary.  When Systrom was given control of a clinical cardiopulmonary lab, he started doing invasive cardiopulmonary exercise tests (iCPET’s) on people with exercise intolerance. 

Invasive Cardiopulmonary Exercise Testing (iCPET)   Continue reading

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“Catastrophizing” – Thomas Dikel

“Catastrophizing” – Thomas Dikel – Medium – Aug 2017

Mr. Dikel seems to have the same feelings about catastrophizing that I do:

I REALLY am starting to resent, not quite hate, but getting close, the use of the word “Catastrophizing.”

What it’s supposed to mean is a distortion in thinking in which something that isn’t that big a deal is made out to be a bloody CATASTROPHE! Its been described as always presuming the worst, making things worse than they are.   Continue reading

Forced Exercise with CBT Fails for CSF

Forced Exercise With CBT Fails for CFS  – Journal of Health Psychology –  August 29, 2017 – free full-text Research Article

The results of this study showed what patients have known all along:

For sufferers of CFS/ME,
exercise is the problem, not the solution,
it’s in the body, not the mind.

Cognitive behavioural therapy and graded exercise theapy are promoted as evidence-based treatments for myalgic encephalomyelitis/chronic fatigue syndrome.

This article explores patients’ symptom responses following these treatments versus pacing therapy, an approach favoured by many sufferers.  Continue reading

CDC Removes Disproven CFS Therapies From Website

CDC Removes Reference to Disputed Chronic Fatigue Therapies From Website – 07.26.2017 / By David Tuller

This is another case of the CDC promoting faulty therapies for chronic illness.

I used to think that the CDC, with its access to all global research, was the final authority on general health care. But now I’m disillusioned about this powerful government agency after finding nonsense therapies being promoted for other problems, like chronic fatigue, not just chronic pain.

For years, the U.S. Centers for Disease Control and Prevention recommended two controversial treatments for ME/CFS, the illness often known as chronic fatigue syndrome:

  1. a program of steadily increasing activity, and
  2. a specific form of cognitive behavior therapy. Continue reading

Stanford Study: ME/CFS is Inflammatory Disorder

Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory Disorder – Simmaron Research By Cort Johnson – August 11, 2017

The study examined the levels of a very large number of cytokines (n=51) in the blood of a very large number of patients and healthy controls (ME/CFS=186; healthy controls= 388). Age, sex, race and something called “nonspecific binding” were accounted for.

One of the biggest ME/CFS immune studies ever undertaken, done at a top University, this was a study that we dearly didn’t want to fail.

This is the kind of study likely to be labeled “definitive”.  Continue reading

Structurally Unsound

Structurally Unsound – TMC News  – Sarrah Hannon wants to demystify Ehlers-Danlos Syndrome – By Mary Vuong | August 03, 2017

Sarrah Hannon once led an active life of triathlons, marathons and rock climbing.

Now she refrains from lifting a gallon of milk.

Hannon, 30, lives with Ehlers-Danlos Syndrome (EDS), a group of genetic connective tissue disorders. The most abundant protein in her body, collagen, is failing her.   Continue reading

Mast Cell Activation Disorder – Yes, It’s Real

Mast Cell Activation Disorder – Yes, It’s Real – Science-Based Medicine – by Steven Novella on May 31, 2017

I have been asked several times about Mast Cell Activation Disorder (MCAD) by people who think there are red flags that maybe this is a made-up disorder.

As I will review below, it is a legitimate and interesting disorder. What is more interesting, from an SBM perspective, is why people would question the diagnosis.

The educated and skeptical public cannot trust apparent experts when they say that a diagnosis is real because there are so many fake diagnoses (and fake experts) out there.   Continue reading

ADHD and reward deficiency syndrome

This PubMed article piqued my interest because of the following paragraphs which seem an uncanny description of the hyper-sensitivity that so many of us suffer from.

It may be that people with ADHD are afflicted with a defective filtering system such that their brainstem reticular formation does not block out irrelevant stimuli. These people appear to be aware of every sound, every object, every touch, and they all merge in disorganized behaviors that are difficult to tolerate

At a deeper level, ADHD is a problem of communication among brain cells, or neurons, possibly involving the neurotransmitters that carry inter-neural messages. If the messengers that inhibit incoming stimuli are deficient, too many signals get through and create confusion.

Attention-deficit-hyperactivity disorder and reward deficiency syndrome – free full-text PMC2626918 – 2008 Oct;   Continue reading

Lyrica Study Uncovers Brain Problems in Fibromyalgia

The Lyrica Effect: Lyrica Study Uncovers Key Brain Abnormalities in Fibromyalgia – Health Rising by Cort Johnson | Sep 30, 2013

Lyrica’s success – despite issues with side effects and efficacy in a significant number of fibromyalgia patients – highlights the tremendous need for drugs that relieve neuropathic pain.  

Fifteen years in development, Lyrica was originally developed to reduce seizures by increasing GABA levels, but was later found to reduce glutamate, substance P and norepinephrine levels instead.

Researchers know the pharmacological effects Lyrica has, but they don’t know what parts of the brain it’s affecting.   Continue reading