Category Archives: Chronic Illness

Neuroinflammation and Cortisol Issues

Could Neuroinflammation Be Triggering the Cortisol Issues in ME/CFS and Fibromyalgia? – Health Rising – by Cort Johnson | Jun 18, 2020

More than any other substance, cortisol demonstrates how integral a role the stress response plays in the functioning of our body.

Our main stress hormone, cortisol is best known for the role it plays in jacking up our fight or flight system, but this versatile substance also

  • affects our metabolism,
  • tamps down inflammation,
  • regulates blood pressure,
  • affects glucose levels, and even
  • impacts our sleep/wake cycle.

Continue reading

Unfit for Work: The startling rise of disability

Unfit for Work: The startling rise of disability in America | Planet Money – By Chana Joffe-Walt – March 2013

This may seem like a strange article to post for someone who’s on disability themselves. However, I know there are many, many people out there scamming our disability system, sometimes for eye-popping amounts.

  • Scammers are the ones that give the impression that helping supposedly disabled people is a pointless waste of money.
  • Scammers are the ones that will cause the system to go bankrupt.
  • Scammer are the ones who cause our own painful conditions to be doubted and denied (for both disability and opioid treatment).

Yet we are the ones who have to shoulder the blame because we’re accused of being such scammers, both in disability claims and in getting opioids for our chronic pain.  Continue reading

What is a cytokine storm?

What is a cytokine storm?By Amber Dance – Apr 2020

As Covid-19 cases fill the hospitals, among the sickest and most likely to die are those whose bodies react in a signature, catastrophic way.

  • Immune cells flood and attack the lungs they should be protecting.
  • Blood vessels leak;
  • the blood itself clots.
  • Blood pressure plummets and
  • organs start to fail.

Such cases, doctors and scientists increasingly believe, are due to an immune system gone overboard — so that it harms instead of helps.   Continue reading

Vitamin D and COVID-19—Prevention or Therapy?

Vitamin D levels appear to play role in COVID-19 mortality rates: Patients with severe deficiency are twice as likely to experience major complications — ScienceDaily – May 2020

Vitamin D can only help if you start with a deficiency. It has little effect if you already have enough of it in your body.

After studying global data from the novel coronavirus (COVID-19) pandemic, researchers have discovered a strong correlation between severe vitamin D deficiency and mortality rates.

The researchers noted that patients from countries with high COVID-19 mortality rates, such as Italy, Spain and the UK, had lower levels of vitamin D compared to patients in countries that were not as severely affected.   Continue reading

Psychiatric Disorders From Ehlers–Danlos Syndrome

Nationwide population-based cohort study of psychiatric disorders in individuals with Ehlers–Danlos syndrome or hypermobility syndrome and their siblings | BMC Psychiatry | Full Text – 04 July 2016

It looks like we inherit not only chronic physical pain but also a fourfold increased risk of both anxiety and depression.

Somehow, it makes sense to me that having a body “too loose” and being physically “unstable” would also manifest as being mentally “unstable”, that along with our physical pain, we also suffer from mental pain.


To assess the risk of psychiatric disorders in Ehlers-Danlos syndrome (EDS) and hypermobility syndrome.   Continue reading

Why smart people believe coronavirus myths

Why smart people believe coronavirus myths – BBC FutureBy David Robson – Apr 2020

This shows that intelligence alone doesn’t provide immunity from hoax messaging, and reminds me not to get lazy and just follow my “hunches”.

We’ve debunked several claims here on BBC Future, including misinformation around how sunshine, warm weather and drinking water can affect the coronavirus.

The BBC’s Reality Check team is also checking popular coronavirus claims, and the World Health Organization is keeping a myth-busting page regularly updated too.

I find it sad that it’s come to this: a global science-based agency having to use precious time and energy defending its actions against myths that can be dispelled so easily.  Continue reading

Exiled from the world of the well, isolated by suspicion

In My Chronic Illness, I Found a Deeper Meaning – The New York Times – Jan 2018 – by Elliot Kukla

I’m not usually a fan of “I accepted my pain, so it got better” stories because they so often reach an overly optimistic and, to me, unrealistic, outcome. But this excellent essay paints a far more realistic picture of what acceptance might look like and how it could be nurtured.

…I had discovered that I was no longer trusted by my doctors about my own body or experiences.

I think this distressing experience is common to all people with invisible and externally undetectable illness, especially when reporting chronic pain.  Continue reading

Dogs excel at sniffing out human illness

Dogs excel at sniffing out human illnessby Christa TrexlerCardiology, UC San Diego – Jul 2018

This is just something I found interesting and it makes me wonder what else dogs can “know” about us, for instance, how dogs left at home know when we are heading back before we get close to home.

For decades doctors have observed that dogs can detect certain diseases in humans by simply sniffing it out, but scientists still don’t understand how dogs are able to spot cancer or diabetes using only their noses.

However, advancements over the last couple of years have brought researchers closer to solving this puzzle, which could lead to revolutionary treatment options for patients with cancer or diabetes.

Dogs can smell almost 10,000–100,000 times better than the average person.   Continue reading

The importance of viral dose is being overlooked

Opinion | These Coronavirus Exposures Might Be the Most Dangerous – The New York TimesBy Joshua D. Rabinowitz and Caroline R. Bartman – Apr 2020

The importance of viral dose is being overlooked in discussions of the coronavirus.

Our current policies restricting all outdoor activities have been bothering me because it just makes sense that some exposures are far more serious than others. Yet, all the parks and beaches have been closed, and that’s where I’d like to go walk/hike/bike. I don’t understand the reasoning behind these seemingly “safe” places (of course, only if you don’t congregate).

For those of us needing a break from the house, why shouldn’t we be allowed to go to a park and hike with our household unit?  Continue reading

Genetic explanation for common group of symptoms

NIH scientists uncover genetic explanation for frustrating syndrome | National Institutes of Health (NIH)

When I first read these symptoms, I immediately thought of EDS with POTS and MCAS, which is a common combination.

Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including

  • dizziness and lightheadedness,
  • skin flushing and itching,
  • gastrointestinal complaints,
  • chronic pain, and
  • bone and joint problems.    Continue reading