Social Media Advocacy In The Chronic Pain Community – December 1, 2018 – December 1, 2018 – Author: gamegetterII
I’m not gonna shut up because of the level of galactically stupid bullshit going on recently in the CPP community.
I wrote 5 posts about this ongoing nonsense – all are linked below – start with Part I and read them all. None are long, rambling posts, all are short and to the point.
After that, read what I’m about to write below the links.
Then actually think about all I’ve said.
Use the brain God gave you and freakin’ think. Continue reading
Tell the Task Force! Advice on Commenting to the HHS Task Force on Pain Management – National Pain Report – By Richard A. (“Red”) Lawhern, Ph.D. – Jan 2019
I sympathize with anybody who may find the Task Force draft to be a tough read. The text is ~60 pages with 446 references.
That’s why I summarized it for you over 3 posts here:
This report is a very positive development for pain patients, especially because (in part 2 of my posts) it specifically rejects the CDC guidelines that have caused us so much disability, distress, and death.
The clampdown on opioid prescriptions is hurting pain patients – by Kate M. Nicholson – Jan 2019
Here is another article by our great advocate, Kate Nicholson, that appeared in the Los Angeles Times – a very mainstream media outlet – where it could be seen by millions.
…at the age of 30, I was no longer able to sit or stand. I could barely walk short distances. These limitations, related to a surgical mishap, would continue for almost 20 years…
When medical advancements led to an improvement of my health, I went off opioids without incident.
It looks like I’m not the only one upset by the severely biased report from the Brookings Institute:
Public Health Experts Call for Retraction of Brookings Institution Opioid “Research Roundup” – By Sarah Beller – Dec 2018
An article published December 7 by the Brookings Institution, a prominent Washington, DC think tank, is under fire for promoting the idea that harm reduction approaches—like syringe exchange and naloxone—may encourage “riskier opioid use” and increase rates of opioid-related deaths.
The focus of the criticism is the choice of which articles to cite—and which not to cite—by the authors of the Institution’s “research roundup.” Continue reading
Response to Oregon’s Tapering Guidance and Tools – by Stephen E. Nadeau, MD – Posted by Jeffrey Fudin – Jan 2019
Dr. Nadeau agreed to share his response to The Oregon Pain Guidance Clinical Advisory Group, Tapering Workgroup*
*The Workgroup and contributors include Jane Ballantyne, Roger Chou, Paul Coelho, Ruben Halperin, Andrew Kolodny, Anna Lembke, Jim Shames, Mark Stephens, and David Tauben.
This reads like a list of the most extreme anti-opioid zealots who have been unconcerned about sentencing pain patients to misery and suicide, just to save addicted people from themselves.
Ballantyne and colleagues, in their recent article, “Tapering – Guidance and Tools” (https://www.oregonpainguidance.org/guideline/tapering/), make the implicit assumption that tapering of opioid regimens in patients with chronic nonmalignant pain is a desirable thing.
This assumption/misunderstanding/ignorance might be the main problem with all these restrictive “opioid policies”. While it’s true for people addicted, it’s clearly a disaster for pain patients (but that is usually ignored). Continue reading
Research roundup: What does the evidence say about how to fight the opioid epidemic? – By Jennifer L. Doleac, Anita Mukherjee, and Molly Schnell – Dec 2018
This report from the highly respected Brookings Institute is a horrible setback for us because it only repeats the tired old song of doctors and patients being the cause of the supposed “opioid crisis”.
This post summarizes recent research on how to reduce opioid abuse and opioid-related mortality. What have we learned so far?
Limiting the supply of opioids while maintaining access to compassionate care for those who need the medication is a challenging balance to strike.
It goes far beyond challenging into the realm of the impossible, at least as long as government agencies believe they can solve the “overdose crisis” by making rules for medical practice. Continue reading
The Other Side of Opioids – YouTube
Here is a mainstream media outlet that’s bucking the opioid BS trend and reporting the truth about our desperate situation – which has nothing to do with the rising rates of overdose deaths from opioids or anything else people can get their hands on.
LAS VEGAS – Nightly newscasts across the country are filled with stories about the opioid epidemic — the opioid crisis. Tens of thousands of Americans who die each year are found with opioids in …
This 45 minute video is a year old and has received 175,000 downloads. It is still current and very pertinent, as the HHS Task Force on Best Practices in Pain Management draws together its recommendations to Congress.
It’s wonderful to see that our story is reaching so many people. I just hope they’re not all other pain patients, but perhaps people that might never have seen this other “painful” side of the supposed “opioid crisis”. Continue reading
Chronic pain patients are forgotten victims of opioid epidemic – By Elyse Morgan and Jacqueline A. Schwarz – Jan 2019
In this article, the authors explain how our screwed up opioid policies arise from 3 fundamental myths firmly embedded in the American mind and endlessly repeated by PROPaganda.
Our country’s well-intentioned efforts to stop opioid abuse and related overdoses have left a group of Americans fighting for their lives. Medications including opiates have allowed hundreds of thousands of patients with chronic pain to function for many years.
Recent media stories to the contrary, research reveals that fewer than 1 percent of patients became addicted following lengthy opioid treatment. Long-term treatment does not cause addiction rates that are higher than those in the total population. Continue reading
It’s a Fentanyl Crisis, Stupid! – Kaatje Gotcha Crippled Comedy – Medium – by Kaatje Gotcha | Crippled Comedy – Dec 2018
This excellent article from an author crippled by spinal pain tells the story of the current “pain crisis”.
She explains how the CDC guidelines were written in secrecy with input mainly from anti-opioid activists and how these guidelines have had horrible effects on pain care in this country. She backs up her statements with numerous current references, as everyone should (and the anti-opioid zealots never do).
In 2012, life was great: I proudly wore a white coat with a stethoscope around my neck and finally felt useful to humanity.
Because the author was/is a medical professional, she knows what she’s talking about. Continue reading
Almost All Overdose Deaths Involve Multiple Drugs, Federal Report Shows – By Erin Schumaker – Dec 12, 2018
A new report analyzing the drugs involved in fatal overdoses once again emphasized fentanyl’s role in the United States’ opioid crisis and highlighted a point frequently made by public health experts:
Most people who fatally overdose
have more than one drug in their system.
In 2016, about 70 percent of fatal overdoses involving fentanyl or heroin involved another drug as well, and roughly 74 percent of fatal overdoses involving cocaine also involved one or more other drugs. Continue reading