Category Archives: Resources

How to read and understand a scientific paper

Impact of Social Sciences – How to read and understand a scientific paper: a guide for non-scientists

From vaccinations to climate change, getting science wrong has very real consequences.

But journal articles, a primary way science is communicated in academia, are a different format to newspaper articles or blogs and require a level of skill and undoubtedly a greater amount of patience.

Here Jennifer Raff has prepared a helpful guide for non-scientists on how to read a scientific paper.   Continue reading

Pilates Training, Instruction and Practice

Free Pilates Exercises for Pilates Training, Instruction and Practice (Pictures)

Here is a description and explanation of many of the most used Pilates exercises. They overlap with the Alexander Technique and require no special equipment.

The Nine Pilates Controlology Introductory Exercises…

(1) Relaxation Scripts

Key words: The Relaxation, and Alexander Technique “Inhibiting”, Pilates Relaxation exercises, relaxation techniques, scripts, Alexander Technique”,

(2) Pilates Pelvic Alignment & Pelvic Alignment Exercises   Continue reading

Top 15 posts of 2016 – 5 Warnings

Top 15 posts of 2016 on EDSinfo

Looking at the most-read posts of the year, I notice the top 5 are warnings particularly important for people with EDS:

  • medication metabolism,
  • antibiotics,
  • steroid injections,
  • anesthetics,
  • physical therapy

Of the next most popular articles, most give more information about pain, especially the headaches that come with EDS.    Continue reading

Finding Therapy – from

Finding Therapy – from

The following resources can be used to help you find mental health treatment services, including affordable treatment for those without insurance, in your community.

Mental Health America’s fact sheet “Finding the Right Care” and some of the sites listed below provide detailed information to help you choose a mental health professional and to enable you to better understand treatment options and the treatment process.

Sites providing specialized treatment referrals for specific illnesses also include considerable information about the specific illness.   Continue reading

How to Lie to Yourself and Others With Statistics

How to Lie to Yourself and Others With Statistics – LifeHacker – by Eric Ravenscraft  10/25/16

Misusing statistics is one of the most powerful ways to lie.

The CDC did exactly this to justify their opioid prescribing guidelines:

By using bad (miscounted, misused) data, they show frightening statistics that lead to utterly wrong conclusions. This article shows exactly how illusions of meaning are created.   Continue reading

BeSafeRx: Know Your Online Pharmacy

BeSafeRx: Know Your Online Pharmacy > Know Your Online Pharmacy – site is maintained by the US FDA.

Fake online pharmacies can manipulate their websites to appear legitimate, so checking the pharmacy’s license through your state board of pharmacy (or equivalent state agency) is an important step to know whether you are using a safe and legal online pharmacy.

Choose your state from the list below to go to your state board of pharmacy’s license database.

The links to databases provided below are maintained by your state agency.   Continue reading

Headache Research: Idiopathic Intracranial Hypertension

Headache: Idiopathic Intracranial Hypertension

I created a search on PubMed to find the most recent applicable articles on the Intracranial Hypertension that might be causing my horrible headaches. Now I realize my headache is more likely to be cervigogenic.

I’m posting them in case anyone else is interested. I chose most of them to be free full text, but a few are just abstracts.   Continue reading

Opioid Receptors: Mu, Delta, Kappa

The endogenous system of opioid receptors (μ MOR,κ KOR, and, δ DOR) is well known for its analgesic potential, but each receptor initiates different effects.

Below are quick descriptions of each:

μ-opioid receptor – Wikipedia, the free encyclopedia

The μ-opioid receptors (MOR) are a class of opioid receptors with a high affinity for enkephalins and beta-endorphin, but a low affinity for dynorphins.

They are also referred to as μ-opioid peptide (MOP) receptors. The prototypical μ-opioid receptor agonist is morphine, the primary psychoactive alkaloid in opium Continue reading

Recommended Chronic Pain Book List

Here are some excellent books written by people who have personally experienced chronic pain, either in themselves or loved ones.

These are mostly from the Pains Project :

Please feel free to suggest others that belong on this list.