Ehlers-Danlos Syndrome or Disease? – Journal of Syndromes – Published in Avens Publishing Group, May 2016
Although first described in 1892 by Tschernogobow in Moscow, the medical history of Ehlers-Danlos syndrome (EDS) begins with Edward Ehlers’s description in 1900 in Copenhagen.
Several avatars would come to stymie its identification to this day, despite its frequency, and foster confusion with other pathologies.
The first of these is the description by Alexandre Danlos (1908), who particularly emphasized a sign: excessively stretchable skin which would become solidly anchored in the minds of doctors who, even today, use it to rule out the diagnosis if it is not found. Continue reading
Somatic Symptom Disorder – from American Psychiatric Association
This is the official explanation of this disorder from the American Psychiatric Association. To me, it makes little sense, claiming it removes confusion and overlap while it confuses and overlaps functional physical pain with mental distress.
The upcoming fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) replaces somatoform disorders with somatic symptom and related disorders and makes significant changes to the criteria to eliminate overlap across the somatoform disorders and clarify their boundaries.
The changes better reflect the complex interface between mental and physical health. Continue reading
What is Lyme Disease and Why Should I Care? – by Carolyn Noel, PAINS Webmaster
May is Lyme Disease Awareness Month. The CDC estimates that while around 300,000 cases are diagnosed, only about 1/10 of the cases are actually reported.
A more accurate count of the actual cases could be “helpful for policymakers and scientists, research and development and the general public to have the idea of the magnitude of the problem.” Continue reading
Problems with diagnosing Conversion Disorder in response to variable and unusual symptoms | Free Full Text PMC | 2014 Apr
Conversion Disorder (CD) is a diagnosis offered to explain signs and symptoms that do not correspond to recognized medical conditions.
Pediatric patients with variable, vague, and multisystem complaints are at increased risk for being diagnosed with CD. Little is known about the impact of such a diagnosis.
In making such diagnoses, it is likely that pediatric providers hope to encourage patients to access mental health care, but no basis exists to show that these diagnoses result in such access in any useful way
This article presents the case of a child with Ehlers-Danlos Syndrome, who had been previously (incorrectly) diagnosed with CD and referred for mental health care. Continue reading
Why Improving Common Tests for Pain is Essential to Patient Satisfaction – MPR
This article in a doctor-oriented journal seems more concerned with patient satisfaction scores than quality medical care.
Clinicians involved in the treatment of musculoskeletal pain pathologies are frequently looking for tools that can change the way tests are ordered, interpreted, and used to improve the care of their patients. Understanding when a test is necessary not only assists with determining a diagnosis, but it also improves patient satisfaction.
“Not only are many procedures unnecessary, some are actually harmful and can lead to mistaken diagnosis or endless rounds of follow-up testing when nothing is wrong,” said David M. Glick, DC, DAAPM, CPE. Continue reading
Chronic Pain Syndrome: Background, Etiology, Patient Education
Various neuromuscular, reproductive, gastrointestinal (GI), and urologic disorders may cause or contribute to chronic pain. Sometimes multiple contributing factors may be present in a single patient
This article provides a surprisingly long list of specific medical diagnoses that can lead to chronic pain.
Disorders commonly associated with chronic pain include the following: Continue reading
Diagnosing EDS | Oh Twist
This is a very long and thorough description of how EDS can be diagnosed by Jan Groh: http://ohtwist.com/about-eds/diagnosing-eds/
Hypermobility Conditions Treatment Hampered Due to Lack of Clinical Understanding
Mobility is great. Hypermobility? Less great. In the joints, hypermobility leads to musculoskeletal pain – and often times, lots of it. A recent review in the Journal of Pain Research outlined several of the challenges in treating generalized joint hypermobility (GJH) and found many difficult questions and few easy answers.
Hypermobility syndrome (HMS) is often the key suspect in cases of chronic pain where no other conditions appear to be causing it. Continue reading
A Narrative Review of the Impact of Disbelief in Chronic Pain
This narrative review sought to explore the wider social context in which individuals with chronic pain may experience disbelief toward their pain.
The experience of stigma can occur in a number of ways. It may be through actual or perceived encounters with others; it can be through the use of psychological explanations of pain; it can come through a perceived challenge to one’s integrity and subsequently affect an individual’s identity; and such stigma may be influenced by negative female stereotypes. Continue reading
Health News – Staring Pain in the Face – Software “Reads” Kids’ Expressions to Measure Pain Levels |01/06/2015
It seems this could just as easily be used for adults.
Examples of a child’s facial expressions of pain from the study, illustrating many of the core facial actions observed in pain.
Accurately assessing pain in children in a clinical setting can be difficult. Continue reading