Tag Archives: EDS

Advances in Hormonal Pain Care

3 Advances in Hormonal Pain Care — Pain News NetworkBy Forest Tennant, MD – Mar 2019

There are three new discoveries or innovations in hormonal pain care that I dearly love. I believe they are real trend-setters, but keep in mind that the “next big thing” may not endure.  

Hormone Derivative Treatment

There are two hormonal derivatives that, in my hands, have been extremely beneficial to sub-groups of chronic pain patients.

The first is medroxyprogesterone, which is a derivative of progesterone. In my experience, medroxyprogesterone is far more potent in treating intractable pain patients than is plain progesterone.   Continue reading

Invasive Surgery to Relieve Chronic Pain?

Invasive Surgery: Effective in Relieving Chronic Pain? By Sunali Wadehra, MD – Feb 2019

Invasive surgery may not be any more effective than sham procedures in reducing chronic pain, according to a meta analysis published by Wayne B. Jonas, MD, in Pain Medicine last September.

Dr. Jonas and his team performed a systematic review of 25 randomized controlled trials published between 1959 and 2013, involving 2,000 patients undergoing surgery for chronic pain.

This article explains a concept I haven’t seen elsewhere: chronic pain versus protracted pain. Especially in the case of EDS, this means we can hurt every day, but still not have true “chronic pain”. Continue reading

Pain, gastrointestinal dysfunction, psychiatric disorders with EDS

Pain and gastrointestinal dysfunction are significant associations with psychiatric disorders in patients with Ehlers-Danlos syndrome and hypermobility spectrum disorders – PubMed – NCBI – Mar 2019

Unfortunately, we don’t have access to the full article, but even the abstract shows that EDS is a systemic dysfunction. Symptoms show up in various bodily systems, leading to both physical and mental health problems.

In this retrospective study, we investigate the frequency and types of psychiatric disorders and their relationship to systemic manifestations in a cohort of 391 Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorder (HSD) patients based on the current 2017 International Classification of EDS diagnostic criteria.   Continue reading

Complex Chronic Pain Disorders

Complex Chronic Pain Disorders By Don L. Goldenberg, MD – Feb 2019

The pathophysiology of and approaches to 3 commonly seen pain conditions: CRPS, EDS, and SFN.

  • Complex regional pain syndrome (CRPS),
  • Ehlers-Danlos syndrome (EDS), and
  • small fiber neuropathy (SFN)

are three important and complex chronic pain disorders.   Continue reading

12 ‘Taboo’ Symptoms of Ehlers-Danlos Syndrome

12 ‘Taboo’ Symptoms of Ehlers-Danlos Syndrome – Yahoo News, syndicated from The Mighty – by Cassidy Colbert – Feb 2019

I’m encouraged to see this article about my specific painful genetic disorder discussed on Yahoo News, and that Yahoo News is syndicating content from The MIghty, an online publication filled with our stories.

When many people talk about Ehlers-Danlos syndrome, the symptoms they often focus on are hypermobile joints and elastic, velvety skin.

However, since EDS is a connective tissue disease (and connective tissue is found throughout most of the body), the condition can cause a plethora of other symptoms – some of which may be considered “taboo,” and can be more difficult to talk about.   Continue reading

Personality differences from intra‐cortical myelin levels

People With Advantageous Personality Traits Have More Nerve-Fibre Insulation (Myelination) In Key Brain Areas – By Christian Jarrett – Jan 2019

I’ve always wondered why a physical defect of connective tissue, as we have with EDS, is linked to anxiety (my life’s greatest plague after pain). This article shows that a lack of good insulation (myelin) around brain neurons can lead to distinct negative personality traits.

Researchers are getting closer to understanding the neurological basis of personality. For a new paper in the Journal of Personality, Nicola Toschi and Luca Passamonti took advantage of a recent technological breakthrough that makes it possible to use scans to estimate levels of myelination in different brain areas (until fairly recently this could only be done at postmortem).

This makes me wonder if our defective connective tissue might also lead to defective insulation around our neurons, allowing some signals to “leak” to adjacent areas. Could that explain my general “mood instability” as well? Continue reading

23 Photos of Ehlers-Danlos Syndrome Skin Damage

23 Photos That Show How Ehlers-Danlos Syndrome Affects the Skin | The MightyPaige Wyant – Dec 2018

The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that include 13 different subtypes.

Though each subtype has its own unique diagnostic criteria and manifests in different ways, several of the most common symptoms those with EDS experience include joint hypermobility, skin hyperextensibility and tissue fragility. 

These are the direct result of having defective collagen (connective tissue). I was surprised to learn that any part of our body that has a shape (not liquid) must contain some connective tissue to hold it together – even our bones.   Continue reading

Physician Online EDS Education | EDS CME Modules

Physician Online Education | EDS CME Modules

The Ehlers-Danlos Society has a series of free EDS educational modules for which doctors can even earn CME credits, so it’s worth their time to take a look. EDS patients, I encourage you to make your doctors aware of this.

This free Ehlers-Danlos Syndrome CME Physician Education Program is the first online EDS course providing CME credits and covering the fundamental principles for the diagnosis, classification, and treatment of Ehlers-Danlos Syndromes and related disorders as well as associated conditions.

Any healthcare providers interested in learning more about EDS diagnosis and treatment are encouraged to view the presentations whether or not they desire the CMEs.   Continue reading