Should We Believe Patients With Pain? – Nov 2018 – by Cmdr John Burke
I recently came across an article about the symptoms that patients with fibromyalgia suffer and the likelihood of their committing suicide.
The rate of suicide is potentially very high, and the prospect of someone we know and love suffering from this disease and considering this drastic action seems plausible.
I have a very close family member and a good friend who both suffer from this disease. The associated pain has been described as excruciating, and they pray that the symptoms pass quickly, meaning in a few days, not hours. Continue reading
Clinical evidence for cervical myelopathy due to Chiari malformation and spinal stenosis in a non-randomized group of patients with the diagnosis of fibromyalgia | SpringerLink – April 2004
While patients with fibromyalgia report symptoms consistent with cervical myelopathy, a detailed neurological evaluation is not routine.
We sought to determine if patients with fibromyalgia manifest objective neurological signs of cervical myelopathy.
I had never heard of this link between fibromyalgia and cervical myelopathy so this would be consistent with the theory that many fibromyalgia patients actually have EDS, which also leads to such types of cervical problems.
It seems this excellent information from over 10 years ago has been ignored by the medical establishment. Continue reading
Pediatric Fibromyalgia – By David D. Sherry, – Cara Hoffart – 2013
This article claims to be an overview of pediatric fibromyalgia but to me, it sounds like doctors are being told to ignore the pain because it’s just psychogenic pain, generated by a psychiatric disorder.
This is how they used to treat adults with FMS too, but adults pushed back and insisted on more research and evidence. Now it’s known that fibromyalgia is a “real” physical issue which includes brain inflammation.
That only makes this article seem crueler when it insists that children with diffuse pain are suffering from a mental, not physical, problem. This whole article conflates fibromyalgia with diffuse amplified pain, which is considered a mental disorder, not a medical issue, a classic example of gaslighting: psychologically manipulating someone so that they question their memories, perception, or sanity Continue reading
PET scans show fibromyalgia patients have inflammation in the brain – Oct. 5, 2018 – By Serena Gordon, HealthDay News
“Finding an objective neurochemical change in the brains of people who are used to being told that their problems are imaginary is pretty important,” explained senior study author Marco Loggia.
I think this is wonderful news. The public usuallly believes that fibromyalgia isn’t a “real” condition, so our suffering from the chronic pain it causes is dismissed as “psychological”. We still can’t detect or measure the pain, but now there’s a way to objectively detect one syndrome/disease that’s causing it.
The new research used an advanced imaging test called positron emission tomography, or PET, and looked at 31 people with fibromyalgia and 27 healthy “controls” from Boston and Stockholm, Sweden. Continue reading
ADHD Linked to Fibromyalgia Syndrome in First-of-Its-Kind Study – Pain Medicine News – by Michael Vlessides
In one of the first-ever studies of its kind, a team of South African researchers found that nearly half of patients with fibromyalgia syndrome (FMS) suffer from concomitant adult attention-deficit/hyperactivity disorder (ADHD).
People suffering from both disorders also reported worse scores on the Revised Fibromyalgia Impact Questionnaire (FIQ-R) and greater cognitive impairment.
Well, this certainly explains a lot. The study also showed that over half of the fibromyalgia patients were depressed and 90% were anxious – no surprise there. Continue reading
AI can spot the pain from a disease some doctors still think is fake – By Olivia Goldhill – August 9, 2018
In the 16 years since Liptan had her illness [fibromyalgia] so summarily dismissed in 2002, there are still those who believe fibromyalgia isn’t “real.”
There’s no tissue damage that explains the pain fibromyalgia patients experience all over their body, and contemporary medicine struggles to treat and even accept an illness where pain seems to be rooted in the mind or brain, rather than a bodily injury.
Artificial intelligence, though, has the potential to make a diagnosis in minutes. Last year, researchers used machine learning to distinguish the brain scans of those with fibromyalgia from those without—with 93% accuracy. Continue reading
This document from the Fibromyalgia Network gives an excellent template for the diagnosis: Continue reading
Imaging Study Finds Rheumatoid Arthritis Shares Neurobiological Features of Fibromyalgia – Pain Medicine News
Patients with rheumatoid arthritis who have increased levels of fibromyalgianess (FMness)—a continuous measure of fibromyalgia—show neurobiological features that are consistently observed in fibromyalgia patients, according to a study that used neuroimaging.
“This is the first study to provide neuroimaging evidence that rheumatoid arthritis [RA] is a mixed pain state,” said senior author Daniel Clauw, MD, a professor of anesthesiology and the director of the Chronic Pain and Fatigue Research Center at the University of Michigan, in Ann Arbor.
I believe this is true for me and my EDS + Fibromyalgia: the endlessly repeating small injuries and pains from EDS eventually sensitized my nervous system into a state of “fibromyalgia-ness”. I can easily imagine the same would happen with RA. Continue reading
Does The Rare Disease EDS Plague Fibromyalgia? – February 23, 2018 – By Celeste Cooper
hEDS = EDS hypermobile type, previously known as EDS type III or joint hypermobility syndrome.
According to the National Organization for Rare Disorders (NORD), there are many Ehlers Danlos Syndromes and related disorders caused by different genetic defects in collagen. We will focus on the most common type of Ehlers-Danlos syndrome in this article.
this type of EDS can co-occur in fibromyalgia and myofascial pain syndrome even though it is thought to be a rare condition. Fibromyalgia and EDS also share connections you might not have considered. Continue reading