Tag Archives: headache

New Type of Chronic Daily Headache

New Type of Chronic Daily Headache Described in Case Series – MPR – Diana Ernst, RPh – September 26, 2017

A case series published in the Journal of Women’s Health describes a new subtype of chronic daily headache that appears to be associated with elevated cerebrospinal fluid (CSF) pressure.

The eight women included in this review

  • were older (average age of onset: 57 years),
  • were mostly overweight or obese (6 out of 8), had a
  • history of episodic migraine (migraines were well-controlled or had ceased prior to new headache onset), and
  • were either perimenopausal or in menopause.   Continue reading

Cerebral Spinal Fluid Leaks & EDS

Through the Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – an Alternate Reality to ME/CFS? – Health Rising by Caroline Christian | Dec 1, 2017

I saw Dr. Ian Carroll, an expert in cerebral spinal fluid (CSF) leaks from Stanford University, for the first time recently. He spent 1.5 hours with me and was very thorough, asking me a series of detailed questions he uses to assess patients for possible CSF leaks (see below).

I have ME/CFS and hypermobile Ehler-Danlos Syndrome (hEDS) and was referred to him by my autonomic specialist at Stanford because my orthostatic intolerance (OI) picture is a bit muddy and because hEDS, a connective tissue disease, is a risk factor and can cause aneurysms and spontaneous leaks from the dural sac (the tough outermost membrane of the spinal cord and brain).   Continue reading

Cervicogenic Headache & Cervical Instability

Cervicogenic Headache – Physiopedia

Due to our overly-stretchable tendons and ligaments, we with EDS often get these headaches that arise from misalignments of our upper cervical spine.

Cervicogenic headache is a chronic headache that arises from the atlanto-occipital and upper cervical joints and perceived in one or more regions of the head and/or face

Continue reading

CerebroSpinal Fluid Flow and Pain Management

Editor’s Memo: Spinal Fluid Flow and Pain Managementpracticalpainmanagement.com – Editor’s Memo June 2017 By Forest Tennant, MD, DrPH

Spinal fluid flow (SFF) [also called cerebrospinal fluid, CSF] has been a silent subject in pain management.

This has to change.

For a while, pain practitioners have unknowingly been utilizing a variety of measures that likely enhance SFF.

Progressive research that involves SFF has shown how it occurs, how it may promote pain, and how it may impede treatment efforts.   Continue reading

DIY Help for Cervicogenic Headaches

Both I and my mother with EDS have found that our occasional episodes of severe headaches are related to instability problems in our cervical spines. (See What Are Cervicogenic Headaches?)

Misalignment of the cervical vertebrae can cause pain from the neck up the back of the head and even into the forehead. So it makes sense that:

“muscle strengthening of the deep neck flexors may ameliorate forward head posture, cervicogenic headache, and tension-type headaches.”
(from Cervical Muscle Dysfunction and Head/Neck/Face Pain)

This set of isometric neck exercises can be done sitting in a chair and are much milder than the previous ones I posted (Exercises to Prevent Cervicogenic Headaches). I had my first success with this set of exercises, and they relieved my mother’s headaches too.
Continue reading

Exercises to Prevent Cervicogenic Headaches

Cervicogenic Headache Exercises – Treat That Killer Headache With These Exercises | The Prehab Guys

My mother and I have both found that neck-strengthening exercises reduce the frequency of our headaches, so I highly recommend these methods.

Anatomy and Physiology of a Cervicogenic Headache

What distinguishes a cervicogenic headache from your more classic headaches like migraines or tension type headaches are that cervicogenic headaches are actually caused from dysfunction in your neck.
Continue reading

Neck Pain and Ehlers-Danlos Syndrome

Neck Pain and Ehlers-Danlos Syndrome | Pain Neck Blog – PainNeck.Com by LMatthews – December 12, 2011

Ehlers-Danlos Syndrome may be the cause of neck pain in some patients and at least three of the most common types of the disorder can contribute to chronic pain in the neck.

ligaments, blood vessels, joints, internal organs, skin, and the inter-cellular matrix are affected by the defect leading to a variety of symptoms.

it is well understood that individual experiences of the disease are extremely variable.

Most patients suffering from neck pain due to Ehlers-Danlos syndrome will also be experiencing pain in other joints of the body and a degree of hyper-flexibility that can cause them to become injured even performing fairly routine activities.

It is thought that EDS is under-diagnosed due to the overlap of symptoms with other illnesses, general aches and pains, and the complexity of the effects of the connective tissue disorder.

Chronic Pain and Joint Degeneration

The severity of the pain and the effect of this on a patients’ quality of life are variable with some requiring significant intervention to prevent serious joint damage occurring

The chronic pain which usually characterizes the disease is often reported as worsening during a patient’s lifetime, perhaps due to progressive wear and tear and damage to the joints.

Neck pain may then result from

due to vascular manifestations of Ehlers-Danlos syndrome.

Effects of Ehlers-Danlos Syndrome

Disruption to sleep and physical activity are two of the most frequently reported effects of EDS, both of which have wide-ranging ramifications for general health and well-being.

The connective tissue disorder also affects patients’ ability to study and to work, and almost half of all patients report that Ehlers-Danlos syndrome adversely affects their sex life

Hyperflexibility, Neck Pain, and EDS

Hypermobility type 3 Ehlers-Danlos syndrome is usually considered the least severe of the classifications of EDS although it is still likely to cause significant pain and disruption in a patient’s life

Dislocations and subluxations are common, occurring with even minor trauma or no apparent cause in some cases but frequently resulting in severe pain

Joint degeneration is common, as is chronic pain not connected to specific dislocations or osteoarthritis.

Patients often bruise very easily when they have Ehlers-Danlos syndrome and many have difficulty maintaining bone density, leading to the increased risk of osteoporotic fractures in later life.

Neck Pain Relief in Ehlers-Danlos Syndrome

Treating EDS involves physical therapy appropriate for the degree of disability and symptom severity in each patient.

Where mobility is affected, patients may use braces, wheelchairs, and scooters but are usually not advised to rely on crutches, canes, or walkers as these can put extra strain on the upper body.

Pain medication is often prescribed but patients may have a difficult time finding a suitable analgesic with manageable side-effects

A combination of therapies is usually beneficial in order to reduce acute suffering whilst attempting to reduce future injury or degeneration of joints. Low-resistance exercise can be helpful in maintaining the strength and stability of joints and ergonomics are very helpful in reducing strain whilst at work or study.

Spinal Stenosis, Pinched Nerves, and Neck Pain

Neck pain from Ehlers-Danlos syndrome can be a result of

  • pinched nerves in the neck,
  • muscle strains or sprains from accidental hyperextension,
  • ischaemia following damage to the vasculature in the neck and cervical spine, and even
  • fracture, subluxation, and spinal stenosis resulting from the condition.

Fibromyalgia, CFS, EDS and Neck Pain

Myofascial spasm and muscular pain is also seen in many patients, with aching joints that throb or are stiff and tender. This is particularly common in the spinal muscles and can contribute to back and neck pain

Hypermobility in the cervical spine may produce similar symptoms to those of whiplash associated disorder as the spinals structures are repeatedly exposed to excessive movements which wear down the cartilage, intervertebral discs, and bones in the spine

Neuropathy and Neck Pain in Ehlers-Danlos Syndrome

Neck pain with neuropathy is also possible in EDS, with radicular pain such as pins and needles in the arms and hands, numbness, burning sensations, and feelings of heat or cold also experienced by some.

Nerve conduction studies are not commonly used during diagnosis and the nerve fibers may be normal in patients with the pain and altered sensation originating instead from spinal nerves that are pinched by 

Neck pain and headache are not uncommon and are thought to be caused by

  • tension in the neck muscles,
  • reduced circulation to the head and neck through vascular damage and blood vessel compression, and
  • possible dysfunction on the temporomandibular joint (the jaw).

Managing EDS

Where neck pain is caused by Ehlers-Danlos syndrome, patients are likely to require physical therapy, pain medications, and assistive devices as well as regular check-ups to monitor the progression of the condition.

Pain medications are thought to be underprescribed in cases of Ehlers-Danlos syndrome and physicians are advised to tailor medication to the subjective experience of patients rather than simply taking objective findings into account.

Neck Pain Relief for Patients with Ehlers-Danlos Syndrome

Patients may be given the best chance of managing their symptoms effectively when their condition and all direct and indirect effects are taken into consideration.

Treatment of neck pain from Ehlers-Danlos syndrome needs careful management in order to reduce the risks of nerve damage and spinal cord compression.

Headaches common with EDS

I’ve noticed an interest in headaches on this blog, so I’ve collected a sample of posts covering different types of headaches to which people with EDS are susceptible.

The looseness in the joints of our neck can cause problems:

Continue reading

Headache from Occipital Neuralgia

Occipital Neuralgia Information Page | National Institute of Neurological Disorders and Stroke

Occipital neuralgia is a distinct type of headache characterized by piercing, throbbing, or electric-shock-like chronic pain in the upper neck, back of the head, and behind the ears, usually on one side of the head.  

  • Typically, the pain of occipital neuralgia begins in the neck and then spreads upwards.
  •  Some individuals will also experience pain in the scalp, forehead, and behind the eyes.  
  • Their scalp may also be tender to the touch, and their eyes especially sensitive to light.     Continue reading

List of Chiari Malformation Symptoms (EDS)

Rebecca’s Brain: Chiari Symptoms – 2014

Though this list is a few years old, symptoms of illness/malformations are only added to, so I’m sure it’s still valid

Although when you meet with doctors the first thing you might get asked is whether or not you are having headaches, there are actually a lot more symptoms than that.

Headaches are definitely one of the most prominent for some people but others, like me, might not find them to be the most worrisome. Some don’t have them at all.

This is a list of known Chiari symptoms (95% of Chiarians have at least 5 of these.)   Continue reading