New Type of Chronic Daily Headache Described in Case Series – MPR – Diana Ernst, RPh – September 26, 2017
A case series published in the Journal of Women’s Health describes a new subtype of chronic daily headache that appears to be associated with elevated cerebrospinal fluid (CSF) pressure.
The eight women included in this review
- were older (average age of onset: 57 years),
- were mostly overweight or obese (6 out of 8), had a
- history of episodic migraine (migraines were well-controlled or had ceased prior to new headache onset), and
- were either perimenopausal or in menopause. Continue reading
Through the Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – an Alternate Reality to ME/CFS? – Health Rising by Caroline Christian | Dec 1, 2017
I saw Dr. Ian Carroll, an expert in cerebral spinal fluid (CSF) leaks from Stanford University, for the first time recently. He spent 1.5 hours with me and was very thorough, asking me a series of detailed questions he uses to assess patients for possible CSF leaks (see below).
I have ME/CFS and hypermobile Ehler-Danlos Syndrome (hEDS) and was referred to him by my autonomic specialist at Stanford because my orthostatic intolerance (OI) picture is a bit muddy and because hEDS, a connective tissue disease, is a risk factor and can cause aneurysms and spontaneous leaks from the dural sac (the tough outermost membrane of the spinal cord and brain). Continue reading
Cervicogenic Headache – Physiopedia
Due to our overly-stretchable tendons and ligaments, we with EDS often get these headaches that arise from misalignments of our upper cervical spine.
Cervicogenic headache is a chronic headache that arises from the atlanto-occipital and upper cervical joints and perceived in one or more regions of the head and/or face
Editor’s Memo: Spinal Fluid Flow and Pain Management – practicalpainmanagement.com – Editor’s Memo June 2017 By Forest Tennant, MD, DrPH
Spinal fluid flow (SFF) [also called cerebrospinal fluid, CSF] has been a silent subject in pain management.
This has to change.
For a while, pain practitioners have unknowingly been utilizing a variety of measures that likely enhance SFF.
Progressive research that involves SFF has shown how it occurs, how it may promote pain, and how it may impede treatment efforts. Continue reading
Both I and my mother with EDS have found that our occasional episodes of severe headaches are related to instability problems in our cervical spines. (See What Are Cervicogenic Headaches?)
Misalignment of the cervical vertebrae can cause pain from the neck up the back of the head and even into the forehead. So it makes sense that:
“muscle strengthening of the deep neck flexors may ameliorate forward head posture, cervicogenic headache, and tension-type headaches.”
(from Cervical Muscle Dysfunction and Head/Neck/Face Pain)
This set of isometric neck exercises can be done sitting in a chair and are much milder than the previous ones I posted (Exercises to Prevent Cervicogenic Headaches). I had my first success with this set of exercises, and they relieved my mother’s headaches too.
Cervicogenic Headache Exercises – Treat That Killer Headache With These Exercises | The Prehab Guys
My mother and I have both found that neck-strengthening exercises reduce the frequency of our headaches, so I highly recommend these methods.
Anatomy and Physiology of a Cervicogenic Headache
What distinguishes a cervicogenic headache from your more classic headaches like migraines or tension type headaches are that cervicogenic headaches are actually caused from dysfunction in your neck.
Neck Pain and Ehlers-Danlos Syndrome | Pain Neck Blog – PainNeck.Com by LMatthews – December 12, 2011
Ehlers-Danlos Syndrome may be the cause of neck pain in some patients and at least three of the most common types of the disorder can contribute to chronic pain in the neck.
ligaments, blood vessels, joints, internal organs, skin, and the inter-cellular matrix are affected by the defect leading to a variety of symptoms.
it is well understood that individual experiences of the disease are extremely variable. Continue reading
I’ve noticed an interest in headaches on this blog, so I’ve collected a sample of posts covering different types of headaches to which people with EDS are susceptible.
The looseness in the joints of our neck can cause problems:
Occipital Neuralgia Information Page | National Institute of Neurological Disorders and Stroke
Occipital neuralgia is a distinct type of headache characterized by piercing, throbbing, or electric-shock-like chronic pain in the upper neck, back of the head, and behind the ears, usually on one side of the head.
- Typically, the pain of occipital neuralgia begins in the neck and then spreads upwards.
- Some individuals will also experience pain in the scalp, forehead, and behind the eyes.
- Their scalp may also be tender to the touch, and their eyes especially sensitive to light. Continue reading
Rebecca’s Brain: Chiari Symptoms – 2014
Though this list is a few years old, symptoms of illness/malformations are only added to, so I’m sure it’s still valid
Although when you meet with doctors the first thing you might get asked is whether or not you are having headaches, there are actually a lot more symptoms than that.
Headaches are definitely one of the most prominent for some people but others, like me, might not find them to be the most worrisome. Some don’t have them at all.
This is a list of known Chiari symptoms (95% of Chiarians have at least 5 of these.) Continue reading