Tag Archives: patients

Huge precision medicine initiative from NIH

NIH opens nationwide enrollment for huge precision medicine initiative – By Lev Facher@levfacher – May 1, 2018

Yet, while our government prioritizes this huge project of individualizing medicine, the corporations in charge of our healthcare are trying to create generic standards (disguised as guidelines) to save money on our medical care that ignore individual factors completely. This is one of the most egregious failures of the CDC Opioid Prescribing Guidelines.

A massive precision medicine initiative that has been years in the making from the National Institutes of Health is being rolled out at last.

The All of Us initiative, which will be launched on May 6, aims to compile detailed health profiles of 1 million Americans, with a special focus on communities historically underrepresented in biomedical research    Continue reading


Why physicians should respect the pain patients report

Why physicians should respect the pain patients report – Karen S. Sibert, MD | Physician | May 3, 2018

We’re all human beings, but we’re not all alike. Each person experiences pain differently, from an emotional perspective as well as a physical one, and responds to pain differently.

That means that physicians like myself need to evaluate patients on an individual basis and find the best way to treat their pain.

This is exactly why it’s such a bad idea for our government agencies to establish medical guidelines that allow only fixed amounts of medications (opioids) for certain diagnoses (chronic pain).   Continue reading

Prescriptions Unused Prove Patients Not Addicted

Mayo Clinic Taking Steps to Tackle Opioid Crisis | KAALTV.com – April 19, 2018 – ABC 6 News

A new Mayo Clinic survey is shedding light on opioid use after surgery and whether or not some patients are being over-prescribed. The survey found about 92 percent of patients keep their leftover pills.

They are trying to prove opioids are over-prescribed but notice this actually proves that 92% of patients receiving opioids did not get addicted.

She said a Mayo Clinic survey found 63 percent of the pain medicines being prescribed to patients after surgery go unused.

No addicted person would be able to leave opioid pills unused, proving again that people taking opioids to treat pain rarely become addicted. 


7 reasons why being in pain is a pain

7 reasons why being in pain is a pain – Franklin Warsh, MD, MPH| December 27, 2017

I’m now walking the second mile in another man’s moccasins, and it’s no more enjoyable than my first mile.

Many doctors cringe when they see a chronic pain patient on their day’s schedule or at least certain chronic pain patients.

Some of that dread isn’t directly caused by the patient but rather the deluge of third-party administrative demands: workman’s compensation updates, disability applications, insurance forms, lawyers’ letters, etc.   Continue reading

What a Doctor With Chronic Illness Wants People to Know

12 Things a Doctor With Chronic Illness Wants People to Know | The Mighty – Feb 2017 – 

I’ve written this article to help educate those who want to learn about chronic illness.

It is written from my perspective, that of a doctor who treated patients with chronic illness for many years, and who spent five years of my life homebound due to chronic illness.

I want to spread awareness so that friends, family, employers, coworkers, and health care professionals can better understand chronic illness.   Continue reading

Held Hostage by Health Care

When Patients and Their Families Feel Like Hostages to Health Care – Mayo Clinic – Sept 2017

Patients are often reluctant to assert their interests in the presence of clinicians, whom they see as experts. [… or law enforcement in the ‘opioid crisis’ -zyp]

The higher the stakes of a health decision, the more entrenched the socially sanctioned roles of patient and clinician can become.

As a result, many patients are susceptible to “hostage bargaining syndrome” (HBS), whereby they behave as if negotiating for their health from a position of fear and confusion Continue reading

The American Patient Defense Union

The American Patient Defense Union is Now Accepting Complaints From Patients Across the United States – Oct 2017 

Could this be what we need to push back against doctors withholding pain care or, even worse, stopping opioid prescriptions without taper?

This message is to inform you that The American Patient Defense Union is now open to receiving your personal complaints and grievances in interacting with Healthcare providers, insurers and drug/device companies.  

Three categories of complaints will be considered by The Union:

  1. Personal grievances about “process issues” at specific hospitals and practices.
  2. Complications or allegations of harm at the hands of specific practitioners, hospitals or drug/device companies.
  3. Personal financial difficulties, collection notices or bankruptcies caused by specific hospitals, practitioners or insurers. 

Please limit your initial communication with The Union to a 500-word email submitted to complaints@patientrights.org.

Please describe your grievance as concisely and specifically as possible.

Following review and consideration of the information you provide, we will conduct a personal interview by phone in order to strategize with you.

No communication with your providers or insurers will take place until we have conducted an interview and obtained your full consent to proceed.

If you wish to communicate with us via a secure two-way encrypted email system, please create a free email account at protonmail.com and use it communicate with us.

Please note that The Union is strictly focused on individual patients’ specific and personal narratives of grievance or complication resulting from treatment by specific healthcare facilities, practitioners and drugs/devices in the United States. These can range from simple to complex matters.

The Union hopes to ultimately identify broad practices and policies that are causing financial or physical harm to individual patients across the United States — in order to address public policy issues on a larger scale. However, our strict starting point in all cases will be the individual American patient’s story of difficulties, conflict with or harm by specific practitioners, hospitals, insurers or drug/device companies.

The Union is NOT a law firm.

However, in cases where we do believe negligence has occurred, we will recommend that you seek legal guidance.

We are aiming to defend your rights and voice, publicly —You, The American Patient.

The Union seeks to establish large-scale collective bargaining power capable of political lobbying at the state and federal levels with the goal of shifting medical practice in the United States away from a profit-driven corporate mode towards a patient-centered system.

In achieving this goal, we need you to rise up and empower this union.

Please note that you are filing your complaint with The Union voluntarily. After verifying the information you provide, The Union will initially use this to generate a professionally-crafted and adequately-measured signal to the healthcare or insurance entity causing the grievance.

This signal will be in the form of a letter of warning from The Union, to the entity you are interacting with, requesting immediate action on your behalf.

Should the provider/insurer not respond in an adequate or timely fashion, this letter of warning will be shared with the public, the press and all members of The Union in order to maximize public scrutiny/exposure.

Ultimately, as The Union acquires member-driven power, it will provide the litigation services necessary to create changes to the behavior of our healthcare establishment using the individual grievances provided by our members.

Every Patient and citizen/resident of the United States is invited to join The Union. Specific instruction to join, including member fees, will be provided at www.patientrights.org in the near future.

Let’s begin to develop the powerful backbone every American patient needs to defend against harm in seeking a healthier tomorrow.

Patient-Focused Guideline for Prescription Opioids

The CDC’s Fictitious Opioid Epidemic, Part 2 | Journal of Medicine | Medical Journals | National College of Physicians – By Richard A. Lawhern, Ph.D

A CDC Guideline for prescribing opioids in chronic pain was published in March 2016. It has become clear that this [CDC] Guideline is generating horrendously negative results for both chronic pain patients and their doctors.

Many doctors are choosing to leave pain management rather than face possible prosecution by State or Drug Enforcement Agency authorities for over-prescription of pain relieving opioids.

Tens (if not hundreds) of thousands of patients are being summarily discharged without referral and sometimes without management of opioid withdrawal. There are increasing reports of patient suicides.   Continue reading

Educating Patients About Pain Medications

Educating Patients About Pain Medications – Practical Pain Management – Last updated on: October 28, 2014

Former US Surgeon General C. Everett Koop, MD, famously said, “Drugs don’t work in patients who don’t take them.” Medications also don’t work in, and can even harm, patients who don’t take them as intended.

In a meta-analysis of research studying medication adherence and treatment outcomes, nonadherence accounted for 33% of hospital admissions for adverse drug events. 

Nonadherence to an analgesic regimen could result in untreated pain or adverse events, which can cause decreased productivity and increased employee absences. Poor provider– patient communication has been identified as a barrier to adherence.   Continue reading

Clinicians Should Never Disrespect Patients

Clinicians Should Never Disrespect Patients | October 14, 2015

I recently read a piece in a prominent journal about the ongoing problem of providers mocking their patients during surgical procedures. It was really troubling, and I think it highlights a common disconnect between providers and patients.

we’re all at risk of putting our own concerns and interests front and center and seeing the patient as little more than an annoyance.

There are endless examples of this, including the language clinicians use to describe patients in charting and documentation. We routinely accuse patients of being “non-compliant.” If a patient says that they don’t have a headache, we say “patient denies headache,” as though they are testifying in a court of law and we are suspicious of their motives and truthfulness.   Continue reading