Systemic Manifestations and Health-Related Quality of Life in Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome-Hypermobility Type – Sydney Medical School, Discipline of Biomedical Science – Krahe, Anne
Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome-Hypermobility Type (JHS/EDS-HT) is a hereditary connective tissue disorder associated with both musculoskeletal and systemic manifestations.
There is increasing recognition of the significance of the non-musculoskeletal manifestations of the disorder, such as
- orthostatic intolerance,
- gastrointestinal symptoms and
- psychological features, Continue reading
The Consequences of Untreated Pain — Pain News Network – June 2017 – By Roger Chriss
Pain is an alarm signal requiring attention. Whether the pain lasts minutes or months, it demands a response.
To ignore pain is to invite serious consequences, from burned skin or an infected wound to a damaged joint or dysfunctional nerve. It is for this reason that healthcare professionals ask patients where it hurts.
Recent research found the consequences of untreated pain go farther and deeper than are generally recognized: Continue reading
This article goes into great detail outlining the consequences of hypermobility syndromes in children, causing chronic pain, significant disability, and a reduction in quality of life.
When flexibility is not necessarily a virtue: a review of hypermobility syndromes and chronic or recurrent musculoskeletal pain in children – 2015 Oct – free full-text PMC4596461
Chronic or recurrent musculoskeletal pain is a common complaint in children.
Among the most common causes for this problem are different conditions associated with hypermobility Continue reading
Who are you? The effect of pain on self | HealthSkills Blog | Feb 2015
Al isn’t very happy. He’s been told that his back pain, which he’s had for six months now, is not likely to go away. He’s been having treatments from physiotherapy, had a return to work programme developed by an occupational therapist, tried medications and injections but nothing has taken his pain away.
He’s slowly stopped seeing his mates, isn’t sleeping well, hasn’t been out fishing in months, and he’s even had trouble keeping from shouting at his boys.
Al doesn’t sound all that different from many of the men I’ve seen in pain management. Continue reading
Musculoskeletal complaints, physical activity and health-related quality of life among patients with the Ehlers–Danlos syndrome hypermobility type: Disability and Rehabilitation: Vol 32, No 16 – Feb 2010
This study can be used to show someone how disabling EDS can be:
Purpose. To investigate the
- musculoskeletal complaints,
- physical activity (PA) and
- health-related quality of life (HRQoL)
in patients with the Ehlers–Danlos syndrome hypermobility type (EDS-HT).
Methods. Thirty-two female EDS-HT patients as defined by the Villefranche criteria and 32 gender- and age-matched healthy control subjects participated in the study. Continue reading
Drug makers push a profitable but unproven opioid solution – StatNews – Dec 2016
Drug makers are aggressively pushing their remedy to the problem [opioid overdoses]:
a new generation of harder-to-manipulate opioids that have racked up billions in sales, even though there’s little proof they reduce rates of overdoses or deaths.
The latest drugs — known as abuse-deterrent formulations, or ADFs — are generally harder to crush or dissolve, which the drug makers tout as making them difficult to snort or inject. Continue reading
Opioid drugs make pain tolerable, most long-term users say – The Washington Post
At the center of the nation’s opioid crisis is a simple fact: Large numbers of Americans experience serious pain, and the vast majority of those who have used strong painkillers for a long period say they work.
CDC Director Tom Frieden recently told The Post that “prescription opiates are as addictive as heroin,” and the agency’s guidelines have noted that there is limited evidence that the drugs are effective in treating long-term pain
This is how to lie while telling the truth:
knowingly insinuating that that something doesn’t work just because it hasn’t been proven with a double-blind placebo-controlled scientific study, and also implying that there is evidence for other treatments that do work. Continue reading
Here is a list of posts (21, through Dec 2016) covering the damage caused by uncontrolled chronic pain, both physical and mental.
While the news is filled with stories of damages from opioid abuse, the damages of pain itself are never mentioned anywhere in the media.
This leaves the public completely ignorant of all the biological damages pain patients suffer if they are not provided effective pain relief quickly.
These are arguments for allowing pain patients access to opioids, showing how important it is to eradicate pain by any means possible as soon as possible. Continue reading
[Full text] A review of chronic pain impact on patients, their social environment | Journal of Pain Research | June 2016
Chronic pain (CP) seriously affects the patient’s daily activities and quality of life, but few studies on CP have considered its effects on the patient’s social and family environment
In this work, through a review of the literature, we assessed several aspects of how CP influences the patient’s daily activities and quality of life, as well as its repercussions in the workplace, and on the family and social environment
Finally, the consequences of pain on the health care system are discussed.
On the basis of the results, we concluded that in addition to the serious consequences on the patient’s life, CP has a severe detrimental effect on their social and family environment, as well as on health care services. Continue reading
“results indicate that chronic pain …
interferes with motivated behavior“
Decreased motivation during chronic pain requires long-term depression in the nucleus accumbens – Science. 2014 Aug 1; – free full-text PMC article
People with chronic pain know how tiring it is to deal with pain every day all day and I thought this fatigue explained why I have so much trouble getting up off the couch.
This study suggests that our pain triggers changes in the brain that depress the nucleus accumbens core (NAc), which is a key node of the neural circuits mediating motivated behaviors, Continue reading