Musculoskeletal complaints, physical activity and health-related quality of life among patients with the Ehlers–Danlos syndrome hypermobility type: Disability and Rehabilitation: Vol 32, No 16 – Feb 2010
This study can be used to show someone how disabling EDS can be:
Purpose. To investigate the
- musculoskeletal complaints,
- physical activity (PA) and
- health-related quality of life (HRQoL)
in patients with the Ehlers–Danlos syndrome hypermobility type (EDS-HT).
Methods. Thirty-two female EDS-HT patients as defined by the Villefranche criteria and 32 gender- and age-matched healthy control subjects participated in the study. Continue reading
Drug makers push a profitable but unproven opioid solution – StatNews – Dec 2016
Drug makers are aggressively pushing their remedy to the problem [opioid overdoses]:
a new generation of harder-to-manipulate opioids that have racked up billions in sales, even though there’s little proof they reduce rates of overdoses or deaths.
The latest drugs — known as abuse-deterrent formulations, or ADFs — are generally harder to crush or dissolve, which the drug makers tout as making them difficult to snort or inject. Continue reading
Opioid drugs make pain tolerable, most long-term users say – The Washington Post
At the center of the nation’s opioid crisis is a simple fact: Large numbers of Americans experience serious pain, and the vast majority of those who have used strong painkillers for a long period say they work.
CDC Director Tom Frieden recently told The Post that “prescription opiates are as addictive as heroin,” and the agency’s guidelines have noted that there is limited evidence that the drugs are effective in treating long-term pain
This is how to lie while telling the truth:
knowingly insinuating that that something doesn’t work just because it hasn’t been proven with a double-blind placebo-controlled scientific study, and also implying that there is evidence for other treatments that do work. Continue reading
Here is a list of posts (21, through Dec 2016) covering the damage caused by uncontrolled chronic pain, both physical and mental.
While the news is filled with stories of damages from opioid abuse, the damages of pain itself are never mentioned anywhere in the media.
This leaves the public completely ignorant of all the biological damages pain patients suffer if they are not provided effective pain relief quickly.
These are arguments for allowing pain patients access to opioids, showing how important it is to eradicate pain by any means possible as soon as possible. Continue reading
[Full text] A review of chronic pain impact on patients, their social environment | Journal of Pain Research | June 2016
Chronic pain (CP) seriously affects the patient’s daily activities and quality of life, but few studies on CP have considered its effects on the patient’s social and family environment
In this work, through a review of the literature, we assessed several aspects of how CP influences the patient’s daily activities and quality of life, as well as its repercussions in the workplace, and on the family and social environment
Finally, the consequences of pain on the health care system are discussed.
On the basis of the results, we concluded that in addition to the serious consequences on the patient’s life, CP has a severe detrimental effect on their social and family environment, as well as on health care services. Continue reading
“results indicate that chronic pain …
interferes with motivated behavior“
Decreased motivation during chronic pain requires long-term depression in the nucleus accumbens – Science. 2014 Aug 1; – free full-text PMC article
People with chronic pain know how tiring it is to deal with pain every day all day and I thought this fatigue explained why I have so much trouble getting up off the couch.
This study suggests that our pain triggers changes in the brain that depress the nucleus accumbens core (NAc), which is a key node of the neural circuits mediating motivated behaviors, Continue reading
Pain management: a fundamental human right. – PubMed – NCBI
This article surveys worldwide medical, ethical, and legal trends and initiatives related to the concept of pain management as a human right.
This concept recently gained momentum with the 2004 European Federation of International Association for the Study of Pain (IASP) Chapters-, International Association for the Study of Pain- and World Health Organization-sponsored “Global Day Against Pain,” where it was adopted as a central theme.
In the past decade, we’ve seen the complete reversal of these ideas. Regarding opioids, ONLY their role in addiction is emphasized and studied, NOT their role in pain control. Continue reading
Strategies for Evaluating the Patient with Chronic Pain – Academy of Integrative Pain Management Blog – Written by W. Clay Jackson, MD, DipTh, Vice President of the Board
It seems the Academy of Integrative Pain Management (AIPM, previously AAPM) is not on our side.
Most articles they post are like the one I’ve annotated and commented on here; they express suspicion about patients’ pain, consider all possible reasons for pain except the biological, and tout all possible treatments except opioid therapy.
A comprehensive evaluation of the patient with chronic pain is rarely straightforward, and it begins with the recognition that a complete cure is unlikely. Continue reading
What Happens When Pain Goes Untreated?
Untreated or under-treated pain is more than uncomfortable. There are profound effects in someone who lives with pain
A 1999 Chinese study of cancer patients showed that, after taking into account the effects of cancer, the more pain someone had, the worse the effects on their health and how they functioned.
Understandably, the relationship between the severity of pain and impairment was nonlinear: patients with no pain or only mild pain were significantly better functioning than those with moderate and severe pain. Continue reading
NIHSeniorHealth: End of Life – Addressing Pain
Struggling with pain can be draining. It can affect mood, making someone seem angry and irritable. Pain can make it hard for someone to talk, to share thoughts and feelings.
Untreated or poorly controlled pain can prevent a dying person from spending time with loved ones in a meaningful way.
Dying does not have to be painful. Experts believe that care for someone at the end of life should focus on treating pain without worrying about the person becoming “addicted.”. Continue reading