The Inaugural 2015 TAP (Treating And Preventing) Chronic Pain Conference will be held this weekend (October 9 -10, 2015) in Arlington, Virginia.
Organized by the National Fibromyalgia & Chronic Pain Association, and the International Myopain Society, the event will be streamed live so that anyone with an internet connection, who has purchased a Live Stream ticket, can have access. The ticket not only gains you access to the show as it is happening, but also provides a code that will allow users access to a recording of the conference, for viewing later at their convenience. Continue reading
This post was prompted by another blogger’s article:
Oh, how I would love to stop taking all these darn pills – the opiates, the muscle relaxants, the anti-depressants, the anti-epileptics – all the types of medications the pain management field has to offer.
But when I look into pain rehab programs, I find their first priority isn’t to help with my pain, but simply to have me stop taking opiates. Classic bait and switch: you think you’re going to get better pain management, but instead, they take away your pain medication and teach you to “tolerate” the pain.
Well, thanks, but I already tried that at home for the last few decades. Continue reading
Consumer Pain Advocacy Task Force (CPATF) is comprised of national leaders and decision-makers from 16 consumer-nonprofit organizations that are dedicated to patient well-being and supporting the use of effective methods for pain treatment. The State Pain Policy Advocacy Network (SPPAN) first convened these leaders in March 2014 to organize a collective action effort to benefit people with pain.
We share a sense of urgency that something needs to be done NOW! All members agree that the following beliefs are integral and should guide collective action:
- Chronic pain is a real and complex disease that may exist by itself or be linked with other medical conditions
- Chronic pain is an unrecognized and under resourced public health crisis with devastating personal and economic impact
- Effective pain care requires access to a wide range of treatment options
- Allowing people to suffer with unmanaged pain is immoral and unethical
Objectives: Continue reading
Over the years I have gifted many cuttings of my “easy-care” houseplants to friends who swore they had a “black thumb”. To their surprise they have been successful at keeping them alive! About a year ago, I gave one to a dear pain camper friend. She found this very therapeutic and I explained how I use my houseplants and hobby of gardening as a tool for my Chronic Pain Toolkit.
Here are 5 of the easy-care houseplants that I’ve gifted from cuttings (which much success!):
- Epipremnum aureum
- Gynura aurantiaca
- Aloe Vera
See the PainCamp site for descriptions of these plants and what care and feeding they need.
They are often tired. Sometimes they are irritable and snap for no apparent reason. They may be depressed or anxious, and they may not want to do the things they used to enjoy. The kids might wonder why Mom or Dad never leave their bed, or why they are so sad. Care-giving family members might feel like they are the only ones helping in the household
Welcome to living with a chronic pain patient.
Living with a chronic pain patient can be complicated. The focus is on helping the patient get better, but in the meantime, caregivers are working hard to keep the household running. The truth is, both the patient and the family members need support in the struggle with chronic pain
Though this article sounds like it was written recently in response to the hydrocodone rescheduling, it was actually written two years ago. Even then, access to opiates was being threatened and it’s only gotten worse.
for individuals who legitimately require and benefit from opioids, the undertreatment of chronic long-term pain is a problem unrecognized even by those in healthcare due to the focus on opioid abuse. “The media generally does not report the issues around opioid use with accuracy, neutrality, and critical thinking. The tide has shifted from demonizing pain medication to demonizing people with pain, continuing the suffering of millions with untreated or undertreated pain,”
Prescribing opioids responsibly is a tricky balance since every patient and his or her pain is unique. In addition to being evaluated for symptoms and the potential for adverse side effects, pain sufferers must be evaluated for substance abuse potential, Barrett says.
The Center for Medicine in the Public Interest is honored to join the US Pain Foundation and other patient-centered organizations in offering our support to the FDA in general and Commissioner Hamburg specifically for savvy and strategic management of pain medicine regulation.
Why now? Well for starters because of the unfair, unbalanced, ad hominem and just plain erroneous attacks on the agency’s efforts.It’s all spelled out in this letter of support just sent to HHS Secretary Burwell. It’s designed for impact.
Have a look and please share. This issue is too important to allow the lunatic fringe to drive the agenda.
The letter lays out the same facts and makes the same points that pain patients themselves are trying to make. I hope this will help our efforts to push back against the barrage of anti-opiate media hype.
You and Your Pain – from the American Academy of Pain Medicine
Take Responsibility for Your Pain
The following tools are provided on the American Chronic Pain Association’s website, a collaborator with the American Academy of Pain Medicine.
- Daily Activity Checklist (PDF)
- Prepare For Your Healthcare Visit (PDF)
- ACPA MedCard (PDF)
- Pain Log (Online Tool)
- Pain Log (PDF)
- CARE Card (PDF)
- Follow-Up From Your Visit (PDF)
- Quality of Life Scale – Graphical Format (PDF)
- Quality of Life Scale – Text Format (PDF)
- Fibro Log (Online Tool)
- Fibro Log (PDF)
- Fibro Pain Map (Online Tool)
- Where Does It Hurt? / Nerve Man (Online Tool)
EDS Patient’s Bill of Rights | An Angel with Wings – written by one of the people that created the International EDS Registry.
The full version of this document is well-worth reading – this is only an outline:
The purpose of this Bill of Rights is not to be combative or argumentative. I have experienced all of these things during the time that my EDS was undiagnosed. My experiences don’t seem to be unique. Many members of the support groups I participate in have had talked about similar experiences with new doctors. Because of these issues, I have a very hard time trusting doctors. This is common in patients with Ehlers Danlos Syndrome. The sole purpose of this Bill of Rights is to ensure that my needs are communicated up front, and to discuss them with you so that we can build a great doctor-patient relationship.
1. I have a right to be treated by medical professionals that believe that Ehlers Danlos Syndrome exists.
2. I have a right to be treated by medical professionals that believe that I have Ehlers Danlos Syndrome.
If you have EDS and you’re trying to find someone to talk to who REALLY understands, check out the Ehlers Danlos Syndrome International Registry. There are so many zebras there! Maybe you’ll find a local friend.