Our Pain is being Minimized or Dismissed as Catastrophizing
When does normal concern about relentless pain become excessive and catastrophizing?
Who has the power to make this decision?
I’m exasperated and offended by the recent over-promotion and over-simplification of the latest popular theory about chronic pain, which uses the derogatory term “catastrophizing” to describe our well-founded concerns about our pain. Continue reading
With so much bad news all around, it’s hard to avoid sinking into despondency. So here’s a fresh and unconventional verse about finding some brighter spots to avoid a fall into the pit of darkness.
It’s Good, Universal By DREW5000G
Some times the life you live showers you with wondrous gifts
Sometimes your heart just insists, and your being feels awash with bliss.
Happiness comes sparingly in these times, Continue reading
This is my story about a hair-raising experience with outpatient surgery when no one realized that the anesthetic was ineffective due to my Ehlers-Danlos Syndrome.
I had my first outpatient surgical procedure when I was still in high school and needed a plantar wart removed from the sole of my foot. As the doctor injected the area with a local anesthetic, he explained he did these procedures all the time and I wouldn’t feel a thing. After a short wait, he began to dig out the deeply embedded wart with a hooked scalpel. Continue reading
This is an essay I wrote out of sheer frustration
I’ve noticed a consistent error in the latest research on opioid therapy: All negative outcomes of opioid/pain research are attributed to the opioid medications instead of the underlying pain.
Researchers willfully ignore that opioids were originally prescribed for unbearable pain and proceeded as though the motivation for these medications were insignificant or irrelevant to their studies.
The many detrimental outcomes these studies find are exactly what you’d expect from a person suffering long-term chronic pain. But researchers place the blame for any negative outcomes on the opioid medications taken to relieve pain, not on the pre-existing pain itself. Continue reading
I’m excited that KevinMD.com has published another one of my essays!
This is an emotional appeal for doctors to push back against the intrusion of politicians, bureaucrats, and administrators into our pain care.
I’ve written it as an open letter to the courageously ethical and compassionate doctors still prescribing opioid medication when necessary.
I’m dismayed, but not surprised. to hear about pain patients whose lives became unbearable after their opioid medication was dramatically decreased or even stopped.
These patients had spent years trying all kinds of other methods to control their pain but lived with the curse that only opioids eased their pain. Once denied their only option for effective pain relief, these patients had no choice left but to escape their incessantly tortured bodies entirely.
If you let someone die by denying them their only source of drinking water, they call it manslaughter. But if you deny them their only effective source of relief from constant, grinding, miserable pain until they literally end their own lives to escape it, they call it “healthcare”. What a travesty!
A Misery too Great to Bear Continue reading
Though not particularly long, this comment took me several days to compose and edit (and edit again). I have only one chance to influence all these various agencies trying to restrict our opioid use, so I want to make my comment compelling enough to make someone think twice.
I intend to point out various issues the reader may have overlooked, the unfairness of the restrictions, the personal harm I will suffer, and end it with a strong question or statement that might resonate with the reader.
==== COMMENT ====
I’m writing to urge you to not let the government set standard medication dosages for individual patients, which will happen if this agency adopts policies based on the scientifically flawed CDC Opioid Prescribing Guidelines. Continue reading
Opioids Blamed for Consequences of Chronic Pain – National Pain Report – 2/23/2017
I’ve noticed a trend in the proliferating numbers of studies ostensibly investigating the damaging effects of opioid therapy:
whatever the negative outcome,
researchers correlate or attribute it
to the opioid medications instead of the underlying pain.
I have been scientifically inclined since childhood and believe there’s always a reason for how scientific studies are designed, but in this case, I’m flummoxed. I hope someone with a better understanding of current research protocols can explain away this apparent design flaw I’ve detailed in my article and restore my faith in the NIH and its research.
The Subtle Arrogance of Good Health
Until my physical ailments began worsening rapidly in my late 40’s, I was a high achiever, proud of my “kick ass” attitude, thinking I was so competent I could surmount any challenge life threw at me. Life appeared to be straightforward and I didn’t understand why this didn’t seem to be the case for so many other less fortunate folks.
Though I worked hard for my accomplishments and sometimes struggled, there was never a question of ability, never a doubt I’d prevail if I made enough effort. Looking back now, I can see the consistent achievements that came so easily and so early in life instilled in me a subtle subconscious arrogance. Continue reading